Rare Disease Day 2025 - #HugsForRare
Marking of Rare Disease Day 2025 was organized under the patronage of the City of Zagreb, in co-organization with the City Office for Social Protection, Health, Veterans, and Persons with Disabilities, and under the patronage of the Ministry of Health of the Republic of Croatia.
Hugs For Rare - Campaign for the Rare Disease Day
Join us for the special campaign 'Hug for Rare' that we are organizing for International Rare Disease Day on February 28! This campaign aims to raise public awareness about the challenges that people living with rare diseases and their families face every day. Rare diseases are often invisible ...
Rare Disease Day 29.2.2024.
Under the slogan “With rare individuals every day, not just every leap year,” we marked this year’s International Rare Disease Day, held under the patronage of the Ministry of Health of the Republic of Croatia, the Ministry of Labour, Pension System, Family and Social Policy, and the City of Zagreb, in co-organization with the City Office for Social Protection, Health, Veterans and Persons with Disabilities.
International Rare Disease Day – #IAmAZebraToo
On the last day of February, we marked another International Rare Disease Day 2023, and this time – in zebra stripes! The Croatian Alliance for Rare Diseases, in co-organization with the City of Zagreb – City Office for Social Protection, Health, Veterans and Persons with Disabilities, launched a media campaign to raise awareness...
Why does a zebra have stripes?
Many have tried to answer the question of why a zebra has stripes, and there are various explanations. One of them is that the stripes serve as camouflage. Predators that surround them do not see the world as we do. Through their eyes, zebras resemble dry grass. Another explanation is…
To mark Rare Disease Day, we have prepared a coloring book for our little ones.
The Croatian Alliance for Rare Diseases has prepared a coloring book for our youngest members and their friends. We invite all interested 'zebras' to support those affected by rare diseases and join our campaign for the commemoration of Rare Disease Day 2023.
European Summit on Rare Diseases 2023
Ahead of the International Rare Disease Day, a major European Summit on Rare Diseases will take place in Madrid. The goal of the event is to discuss key trends and topics related to the diagnosis and treatment of rare diseases, as well as the challenges of timely and equitable access to medicines for rare diseases and European healthcare systems.
International Rare Disease Day marked in cities across Croatia
The Croatian Alliance for Rare Diseases celebrated its 20th anniversary this year. The Alliance is the umbrella organization for rare diseases in Croatia, currently bringing together 32 member associations and over 1,100 individual members, including those affected by rare diseases and their families. One of the key activities of the Alliance...
Celebrating the 20th Anniversary of the Alliance
On February 28, 2022, at 4:00 PM, a ceremonial event was held to mark the International Rare Disease Day and the 20th anniversary of the Alliance. At the beginning of the event, the Vice President of the Alliance, Mrs. Sara Bajlo, welcomed all attendees. Then, Dr. Ivana Marinac, a member of the Board of Directors of the Alliance, presented...
International Rare Disease Day
February 28th is celebrated as the International Rare Disease Day. On this day, we focus on rare diseases and highlight some of the most important facts.
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