Program: Expanding the Support Center for People Living with Rare Diseases and Their Families

• Funded by: Ministry of Labour, Pension System, Family and Social Policy

• Program Title: Expanding the Support Center for People Living with Rare Diseases and Their Families  
• Program Duration: June 1, 2020 – May 31, 2023 
• Total Program Value: 600,000 HRK 
• The objective of the project is to continue developing and expanding networks of specialized services for children with developmental disabilities and persons with disabilities as a result of rare diseases, as well as their families. 

Key Objectives: :

• Improved access to essential information, psychosocial support, and social inclusion services for families of children with developmental disabilities and people with rare disease-related disabilities throughout Croatia. 
• Enhanced quality of services through in-depth analysis of beneficiary needs and profiles, enabling the development of innovative, personalized social services tailored to the rare disease community. 
• Empowerment and social inclusion of children and individuals with disabilities through psychosocial support, inclusive playgroups for children to strengthen social skills, and occupational therapy activities for adults. 
• Strengthening collaboration with leading institutions, local authorities, and civil society organizations to better identify new beneficiaries, refer them to the Croatian Alliance for Rare Diseases, and ensure timely, appropriate support and improved service delivery at the local level.