October 25 marks Epidermolysis Bullosa (EB) Day, which also launches International Epidermolysis Bullosa Awareness Week (October 25–31, 2025).

Epidermolysis bullosa is a very rare and severe genetic condition that causes extreme fragility of the skin and mucous membranes. Those affected are often referred to as “butterfly children” because even the gentlest touch can cause painful wounds resembling burns. Everyday activities such as dressing, eating, or walking can be a source of pain, and the disease often leads to serious complications and frequent hospitalizations. Most people living with EB develop disabilities at an early age — and sadly, there is still no cure.

DEBRA Croatia is an association that brings together people affected by rare diseases and their families, offering help, support, and connection. The organization is dedicated to improving the quality of life for individuals with epidermolysis bullosa and other rare diseases through a variety of initiatives and projects.

  • Main goal: Connecting patients and their families and organizing help and support
  • Core principle: Supporting people living with rare diseases
  • Specific focus: Improving the lives of individuals with epidermolysis bullosa and other rare diseases

📍 DEBRA Hrvatska
Prilaz Gjure Deželića 30, Zagreb
📞 +385 1 4555 200
📧 info@debra-croatia.com
🌐 www.debra-croatia.com

This content was created with the financial support of the Ministry of Health. The content of this document is the sole responsibility of the Croatian Alliance for Rare Diseases and under no circumstances can it be considered as reflecting the views of the Ministry of Health.