Author: sara

Development of the Student Helpline – Brochure for Healthcare Professionals

In collaboration with the Student Section for Rare Diseases of the University of Zagreb School of Medicine, an educational and informational brochure titled "Rare Info Library for Healthcare Professionals" has been developed. The brochure contains information about rare diseases that is important for primary healthcare physicians, details about reference centers for rare diseases,...

Rare Disease Counseling Center – A Comprehensive Support System – Project "Little Wish, Big Happiness!"

The "Little Wish, Big Happiness!" project is a long-standing initiative that began as a student initiative aimed at raising awareness about the presence and diversity of rare diseases in our region. Its mission is to bring rare diagnoses closer to the public and foster a greater understanding of the needs of those affected, thereby contributing to the creation of...

Rare Disease Counseling Center – A Comprehensive Support System – The Role of Psychologists in the Resource Center for Rare Diseases

Chronic diseases exhaust the psychological capacities of those affected, impact their close family members and surroundings, and often bring with them feelings of isolation and loneliness, sadness, fear, anger, worry about the future, a distorted self-image, and shame, which can lead to lowered mood, dissatisfaction with life, and...

Development of the Student Helpline

On Thursday, November 14, 2025, at 4:00 PM, a training session was held for both old and new volunteers of the Student Section for Rare Diseases at the University of Zagreb School of Medicine, at the Educational Center East of the Clinical Hospital Center Zagreb at Rebro. The goal of the training is to review the objectives and purpose of the Student Helpline project every year...

Counseling Center for Rare Diseases – System of Comprehensive Support – Membership and Networking Among Patients with the Same Diagnosis

Rare diseases often bring challenges in everyday life—not only regarding diagnosis and treatment or securing rights but also within the social environment. Therefore, we aim to provide patients the opportunity to connect with others who share the same diagnosis, giving them a chance to exchange experiences, information, and advice…

Liver Awareness Month

October is the month in which we remind the general public about liver diseases, as well as the importance of liver health, prevention, and early detection of various conditions (Liver Awareness Month). The primary organizer of this campaign was initially the American Liver Foundation…

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