An important area of work for social workers is informing users about their rights, mediating on their behalf in the realization of those rights, and protecting their existing rights.

You can contact the social worker via email at nikolina.hsrb@gmail.com or by phone at 091/4443-038, on weekdays from 8 AM to 12 PM..

Here, you can find key information about the rights of rare disease patients, as well as the rights of parents of children with rare diseases.

Additional information on family law protection, social services, benefits within the social welfare system, and more can be found on the website of the Croatian Institute for Social Work.. 

HANDBOOK ON RIGHTS 

• The Handbook was created to provide an overview of the existing rights that individuals with rare (and other) diseases can access in Croatia.
• It is important to emphasize that not all individuals with the same diagnosis have the same rights, as the symptoms and impact of the disease on the overall functioning and quality of life can vary greatly. Additionally, the range of symptoms within a given diagnosis, as well as the intensity and progression of the disease among individuals with the same diagnosis, can differ significantly.
• An individual can access benefits and services if they meet the conditions outlined by the relevant legal regulations.
• Furthermore, if it is necessary to establish facts related to the individual’s health status as part of the process of obtaining a specific right, the competent institution will request a report and opinion from the regional branch of the Institute for Expert Assessments, Professional Rehabilitation, and Employment of Persons with Disabilities.
• The Institute for Expert Assessments, Professional Rehabilitation, and Employment of Persons with Disabilities – Expert assessments involve determining physical, intellectual, sensory, and mental impairments, disability, as well as the functional and work abilities of the individual.