World Motor Neurone Disease (MND) Awareness Day is observed every year on June 21.

The aim of this day is to raise awareness about motor neurone diseases, such as Amyotrophic Lateral Sclerosis (ALS), Progressive Bulbar Palsy, Progressive Muscular Atrophy, Primary Lateral Sclerosis, and Progressive Pseudobulbar Palsy.

It also serves to promote the importance of research and the development of therapies for these progressive neurological disorders that affect motor neurons and lead to a gradual loss of muscle function.

Symbolically, June 21—the longest day of the year in the northern hemisphere—was chosen to represent the “long day” faced by people living with these severe conditions.

Motor neurone diseases (MNDs) are a group of rare, progressive neurological disorders that affect the nerve cells (neurons) responsible for controlling muscle movement. In MND, motor neurons in the brain and spinal cord gradually deteriorate, leading to muscle weakness, cramps, difficulty speaking, swallowing, and breathing. The disease gradually strips away mobility, although in most cases mental abilities remain intact. The cause is often unknown, and while there is currently no cure, treatments can help alleviate symptoms and slow disease progression.

The Neuron Association is a non-profit organization founded in 2014 in Zagreb with the mission of supporting individuals affected by ALS and other rare neuromuscular diseases. It provides psychosocial support, organizes educational events, supplies medical aids, and advocates for the rights of those affected.

Neuron – Association of People with ALS and Other Rare Diseases

Mail: neuron.hrvatska@gmail.com

President Vesna Maćešić

Mail: vesna.neuron@gmail.com

mob +385915421068

Web page: www.udruga-neuron.hr

This content was developed with the financial support of the Ministry of Health. The content of this document is the sole responsibility of the Croatian Alliance for Rare Diseases and can under no circumstances be regarded as reflecting the views of the Ministry of Health.