World Duchenne Muscular Dystrophy (DMD) Day is observed on September 7 to raise awareness about this rare, genetic, and progressive disease that most commonly affects boys. The purpose of this day is to emphasize the importance of early diagnosis and access to therapies, provide support to families, and encourage further research and the development of new treatment options.

Duchenne Muscular Dystrophy (DMD) is a severe genetic disorder characterized by progressive muscle weakness and atrophy. It is the most severe form of muscular dystrophy, typically affecting boys, and is marked by the loss of the protein dystrophin, which is essential for maintaining muscle cells.

Therefore, it is important to:

  • Ensure timely diagnosis,
  • Provide access to therapies and rehabilitation,
  • Offer psychological and social support to families,
  • Continuously invest in scientific research and the development of new treatment methods.

DMD Croatia Association brings together patients, their families, and everyone who wishes to provide support.
The goals of the association are to:

  • Raise awareness about Duchenne muscular dystrophy,
  • Provide information and counseling to families,
  • Connect members through support groups and joint events,
  • Advocate for the rights of patients and for access to new therapies and rehabilitation options,
  • Collaborate with experts and promote scientific research.

Contacts:

Udruga DMD Hrvatska

Ulica V 22, 23231 Petrčane, Hrvatska
Telefon: +385 91 913 8010
Email: dmdhrvatska@gmail.com

Web: https://dmdhrvatska.hr/

This content was created with the financial support of the Ministry of Health. The content of this document is the sole responsibility of the Croatian Alliance for Rare Diseases and under no circumstances can it be considered as reflecting the views of the Ministry of Health.