• NEWS
  • RDD
  • RARE DISEASES
    • Rare Disease Database
    • Rare Library
    • Documentary Films
  • PROJECTS
    • HBOR
    • Erasmus+
    • MRMSOSP
    • Ministry Of Health
    • Bilateral Cooperation Fund
    • ACF
    • National Foundation for Civil Society Development
    • ESF
  • CONFERENCES
  • SERVICES
    • Rare Infotheque
    • Psychological Support
    • Counseling on Rights
    • Help Line
    • Association Counseling
  • ABOUT US
    • Alliance Documentation
    • Management Board
    • Employees
    • External Collaborators & Volunteers
    • Partners & Donors
    • Public Relations
    • Child Protection Policy
    • Contacts
Toggle menu

Blog Post

Home > In the Media > Prenosimo priču Story.hr magazina o našoj Sari Bajlo: HRABRA ISPOVIJEST MAJKE: ‘Od vesele curice, moja je Gabi s 11 ostala nepokretna, slijepa i hranila se preko sonde’

Prenosimo priču Story.hr magazina o našoj Sari Bajlo: HRABRA ISPOVIJEST MAJKE: ‘Od vesele curice, moja je Gabi s 11 ostala nepokretna, slijepa i hranila se preko sonde’
by sara October 5, 2021
In the Media
Share
56 / 218

Related Posts

Zdravlje na kvadrat donosi priču o životu s rijetkim bolestima
In the Media

Docent Mario Ćuk za Zdravlje na kvadrat: „Rijetke bolesti, kod više od 35 posto djece, uzrok su smrtnom ishodu unutar prve godine života.“
In the Media

Mreža Tv i Ključ zdravlja donose priču o svmu što smo pripremili za naše najmlađe
In the Media

Categories

  • ACTIVITIES
  • Bilateral Cooperation Fund
  • Conferences
  • Rare Disease Day
  • Public Relations
  • Online Education
  • Projects
  • Occupational Therapy
  • Rare Infotheque
  • In the Media
  • Services

Zadnje objave

  • World Scleroderma Awareness Day
  • International Phenylketonuria (PKU) Awareness Day
  • International Dravet Syndrome Awareness Day
  • World Motor Neurone Disease Awareness Day
  • Lamb-Shaffer Syndrome Awareness Day

Subscribe

* indicates required

The Croatian Alliance for Rare Diseases will contact you exclusively via the following email address:

You can cancel your subscription at any time by clicking the link in the footer of our emails. For information about our privacy policy, please visit our website.

We use Mailchimp as our marketing platform. By clicking below to subscribe, you acknowledge that your information will be transferred to Mailchimp for processing. Learn more about Mailchimp's privacy practices here.

velika
The Croatian Alliance for Rare Diseases is a recipient of institutional support from the National Foundation for Civil Society Development for the stabilization and/or development of the association.
eu-fondovi
eu-esf
eu-hszrb
eu-all_small
The content of the website is the sole responsibility of the Croatian Alliance for Rare Diseases
The creation of the website was co-financed by the European Union from the European Social Fund
eu-eu
European Union

Together for EU Funds

Learn more about the project

About us

Management Board

Member Associations

External Collaborators

Contact

Ivanićgradska 38, Zagreb (Dom zdravlja ZG-Istok)
01 2441 393
rijetke.bolesti@gmail.com
8:00-16:00
Copyright 2020 Hrvatski savez za rijetke bolesti.
Development by Fugaj Creative.
en_GBEN
hrHR en_GBEN