{"id":6563,"date":"2026-08-31T09:50:24","date_gmt":"2026-08-31T07:50:24","guid":{"rendered":"https:\/\/rijetke-bolesti.com\/?p=6563"},"modified":"2026-08-12T10:16:29","modified_gmt":"2026-08-12T08:16:29","slug":"vise-od-dijagnoze-price-ljudi-koji-zive-sa-spinalnom-misicnom-atrofijom-6","status":"publish","type":"post","link":"https:\/\/rijetke-bolesti.com\/en\/vise-od-dijagnoze-price-ljudi-koji-zive-sa-spinalnom-misicnom-atrofijom-6\/","title":{"rendered":"Vi\u0161e od dijagnoze: pri\u010de ljudi koji \u017eive sa spinalnom mi\u0161i\u0107nom atrofijom"},"content":{"rendered":"

Kristinina pri\u010da<\/strong><\/p>\n\n\n\n

U Mjesecu svjesnosti o SMA dijelimo pri\u010de ljudi koji svakodnevno pokazuju da \u017eivot sa SMA nije samo pri\u010da o izazovima \u2013 nego i o snazi, ljubavi, snovima i malim i velikim pobjedama.<\/p>\n\n\n\n

Kristina Hor\u017ei\u0107 ima 32 godine. Ona je k\u0107i, sestra, prijateljica, partnerica i najva\u017enije \u2013 mama dvogodi\u0161njeg Mate. Njezin dan po\u010dinje rano, uz prvu jutarnju kavu i pripremu za novi dan. Nakon radnih obaveza, najljep\u0161i dio dana po\u010dinje kada do\u0111e po svog Matu \u2013 tada kre\u0107u njihovi zajedni\u010dki trenuci, puni igre, smijeha i malih avantura. Za Matu mamina kolica nisu prepreka \u2013 jer za njega mama mo\u017ee sve. Zajedno idu u park, na ljulja\u010dke, u \u0161etnje i stvaraju uspomene koje vrijede najvi\u0161e.<\/p>\n\n\n\n

\u201ePonosna sam na sebe jer sam ostvarila sve \u0161to sam \u017eeljela. Imam posao koji volim, divnu obitelj i sina koji je moj najve\u0107i pokreta\u010d.\u201c<\/p>\n\n\n\n

Kristina ne skriva da postoje te\u0161ki dani, dani kada umor i bol postanu preveliki. Ali jedan Matin osmijeh dovoljan je da je podsjeti za\u0161to se vrijedi boriti svaki novi dan. SMA je dio njezina \u017eivota, ali nije ono \u0161to je definira. Kristina putuje, ostvaruje svoje snove i okru\u017eena je ljudima koji je vide prije svega kao osobu \u2013 a ne kao dijagnozu.<\/p>\n\n\n\n

Danas, zahvaljuju\u0107i napretku medicine, postoje terapije koje mogu usporiti tijek bolesti i pru\u017eiti nove mogu\u0107nosti osobama koje \u017eive sa SMA. Upravo zato Kristina vjeruje u budu\u0107nost.<\/p>\n\n\n\n

Svaka pri\u010da, svaki osmijeh i svaki mali i veliki uspjeh podsje\u0107aju nas za\u0161to je va\u017eno podizati svijest o SMA. Jer kada govorimo o SMA, ne govorimo samo o bolesti \u2013 govorimo o ljudima, njihovim snovima i budu\u0107nosti koju \u017eele graditi. A budu\u0107nost se ne podrazumijeva. Zato je va\u017eno o njoj govoriti.<\/p>\n\n\n\n

#MjesecSMA #SMA #SpinalnaMi\u0161i\u0107naAtrofija<\/p>\n\n\n

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Kristinina pri\u010da U Mjesecu svjesnosti o SMA dijelimo pri\u010de ljudi koji svakodnevno pokazuju da \u017eivot sa SMA nije samo pri\u010da o izazovima \u2013 nego i o snazi, ljubavi, snovima i malim i velikim pobjedama. Kristina Hor\u017ei\u0107 ima 32 godine. Ona je k\u0107i, sestra, prijateljica, partnerica…<\/p>","protected":false},"author":3,"featured_media":6564,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"content-type":"","footnotes":""},"categories":[34],"tags":[],"class_list":["post-6563","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-rijetka-infoteka"],"yoast_head":"\nVi\u0161e od dijagnoze: pri\u010de ljudi koji \u017eive sa spinalnom mi\u0161i\u0107nom atrofijom - Hrvatski savez za rijetke bolesti<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/rijetke-bolesti.com\/en\/vise-od-dijagnoze-price-ljudi-koji-zive-sa-spinalnom-misicnom-atrofijom-6\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Vi\u0161e od dijagnoze: pri\u010de ljudi koji \u017eive sa spinalnom mi\u0161i\u0107nom atrofijom - Hrvatski savez za rijetke bolesti\" \/>\n<meta property=\"og:description\" content=\"Kristinina pri\u010da U Mjesecu svjesnosti o SMA dijelimo pri\u010de ljudi koji svakodnevno pokazuju da \u017eivot sa SMA nije samo pri\u010da o izazovima \u2013 nego i o snazi, ljubavi, snovima i malim i velikim pobjedama. 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