{"id":6562,"date":"2026-08-28T09:50:22","date_gmt":"2026-08-28T07:50:22","guid":{"rendered":"https:\/\/rijetke-bolesti.com\/?p=6562"},"modified":"2026-08-12T10:12:11","modified_gmt":"2026-08-12T08:12:11","slug":"vise-od-dijagnoze-price-ljudi-koji-zive-sa-spinalnom-misicnom-atrofijom-5","status":"publish","type":"post","link":"https:\/\/rijetke-bolesti.com\/en\/vise-od-dijagnoze-price-ljudi-koji-zive-sa-spinalnom-misicnom-atrofijom-5\/","title":{"rendered":"Vi\u0161e od dijagnoze: pri\u010de ljudi koji \u017eive sa spinalnom mi\u0161i\u0107nom atrofijom"},"content":{"rendered":"

Marinina i Lovrina pri\u010da<\/strong><\/p>\n\n\n\n

Kad postanete roditelj djeteta koje \u017eivi sa spinalnom mi\u0161i\u0107nom atrofijom, nau\u010dite da se \u017eivot ne mjeri velikim planovima, nego malim pobjedama. Svakim novim danom, svakim osmijehom i svakim trenutkom koji zajedno dijelite.<\/p>\n\n\n\n

Lovrina mama Marina ka\u017ee da je upravo on nau\u010dio cijelu obitelj koliko je malo potrebno za sre\u0107u. Iako se svakodnevno suo\u010dava s izazovima, Lovro je uvijek nasmijan, pun topline i spreman pru\u017eiti osmijeh drugima. Najvi\u0161e ih raduje kada ga druga djeca prihvate bez zadr\u0161ke, uklju\u010de u igru i poka\u017eu da prijateljstvo ne poznaje prepreke.<\/p>\n\n\n\n

\u201eNa\u0161 \u017eivot mo\u017eda nije onakav kakav smo zami\u0161ljali, ali je na\u0161. I ispunjen je ljubavlju, smijehom i trenucima koje danas cijenimo vi\u0161e nego ikad.\u201c<\/p>\n\n\n\n

Za Lovrinu budu\u0107nost \u017eeli ono \u0161to \u017eeli svaki roditelj \u2013 da bude sretan, prihva\u0107en takav kakav jest i okru\u017een ljudima koji \u0107e u njemu vidjeti njegove mogu\u0107nosti, a ne njegova ograni\u010denja. Vjeruje i da \u0107e daljnji napredak medicine djeci koja \u017eive sa SMA donijeti jo\u0161 vi\u0161e prilika za kvalitetan i ispunjen \u017eivot.<\/p>\n\n\n\n

Svima koji se tek suo\u010davaju s dijagnozom poru\u010duje da ne gube nadu. Danas, vi\u0161e nego ikada prije, postoji razlog vjerovati da budu\u0107nost mo\u017ee izgledati druga\u010dije. Jer dijagnoza postane dio \u017eivota, ali nikada ne bi smjela postati cijeli \u017eivot.<\/p>\n\n\n\n

U Mjesecu svjesnosti o SMA govorimo o izazovima, ali jo\u0161 vi\u0161e o ljudima, prihva\u0107anju i nadi. Jer osobe koje \u017eive sa SMA puno su vi\u0161e od svoje dijagnoze.<\/p>\n\n\n\n

Budu\u0107nost se ne podrazumijeva. Zato je va\u017eno o njoj govoriti.<\/p>\n\n\n\n

#MjesecSMA #SMA #SpinalnaMi\u0161i\u0107naAtrofija<\/p>\n\n\n

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Marinina i Lovrina pri\u010da Kad postanete roditelj djeteta koje \u017eivi sa spinalnom mi\u0161i\u0107nom atrofijom, nau\u010dite da se \u017eivot ne mjeri velikim planovima, nego malim pobjedama. Svakim novim danom, svakim osmijehom i svakim trenutkom koji zajedno dijelite. Lovrina mama Marina ka\u017ee da je upravo on nau\u010dio…<\/p>","protected":false},"author":3,"featured_media":6564,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"content-type":"","footnotes":""},"categories":[34],"tags":[],"class_list":["post-6562","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-rijetka-infoteka"],"yoast_head":"\nVi\u0161e od dijagnoze: pri\u010de ljudi koji \u017eive sa spinalnom mi\u0161i\u0107nom atrofijom - Hrvatski savez za rijetke bolesti<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/rijetke-bolesti.com\/en\/vise-od-dijagnoze-price-ljudi-koji-zive-sa-spinalnom-misicnom-atrofijom-5\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Vi\u0161e od dijagnoze: pri\u010de ljudi koji \u017eive sa spinalnom mi\u0161i\u0107nom atrofijom - Hrvatski savez za rijetke bolesti\" \/>\n<meta property=\"og:description\" content=\"Marinina i Lovrina pri\u010da Kad postanete roditelj djeteta koje \u017eivi sa spinalnom mi\u0161i\u0107nom atrofijom, nau\u010dite da se \u017eivot ne mjeri velikim planovima, nego malim pobjedama. 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