{"id":6515,"date":"2026-08-17T09:35:46","date_gmt":"2026-08-17T07:35:46","guid":{"rendered":"https:\/\/rijetke-bolesti.com\/?p=6515"},"modified":"2026-08-12T09:45:09","modified_gmt":"2026-08-12T07:45:09","slug":"vise-od-dijagnoze-price-ljudi-koji-zive-sa-spinalnom-misicnom-atrofijom-2","status":"publish","type":"post","link":"https:\/\/rijetke-bolesti.com\/en\/vise-od-dijagnoze-price-ljudi-koji-zive-sa-spinalnom-misicnom-atrofijom-2\/","title":{"rendered":"Vi\u0161e od dijagnoze: pri\u010de ljudi koji \u017eive sa spinalnom mi\u0161i\u0107nom atrofijom"},"content":{"rendered":"

Josipina i Larina pri\u010da<\/strong><\/p>\n\n\n\n

\u201eLara ima spinalnu mi\u0161i\u0107nu atrofiju, ali ona \u017eivi sto \u017eivota.\u201c<\/p>\n\n\n\n

Tako svoju k\u0107er opisuje Josipa Matija\u0161ec, majka i \u017eena koja i sama \u017eivi sa spinalnom mi\u0161i\u0107nom atrofijom.<\/p>\n\n\n\n

Lara je osmogodi\u0161nja djevoj\u010dica koja voli ples, more, plivanje, vatrogasce i svako dru\u017eenje. Obo\u017eava biti me\u0111u ljudima, \u0161aliti se, plesati i smijati se od srca. Kako ka\u017ee njezina majka, Lara ni\u0161ta ne \u017eeli propustiti \u2013 i upravo zato \u010desto ka\u017ee da njezina k\u0107i \u201e\u017eivi sto \u017eivota\u201c.<\/p>\n\n\n\n

Lara ima nevjerojatnu volju za \u017eivotom. \u017deli sudjelovati, u\u010diti, isprobavati nove stvari i biti dio svega. A njezine male i velike pobjede za Josipu imaju posebno zna\u010denje. Jedna od najve\u0107ih dogodila se 2022. godine, kada je Lara zapo\u010dela lije\u010denje. Prije toga te\u0161ko je savladavala i nekoliko stepenica. A onda je jednog dana sama krenula uz stepenice \u2013 i napravila salto.<\/p>\n\n\n\n

\u201eTo je bio trenutak koji nikada ne\u0107u zaboraviti. Trenutak koji nam je vratio nadu.\u201c<\/p>\n\n\n\n

Danas Lara vozi bicikl i romobil, pliva, roni, ple\u0161e i osvaja medalje. A svaki put kada nakon treninga ponosno poka\u017ee svoju medalju, Josipa osje\u0107a poseban ponos \u2013 jer zna koliko joj zna\u010di osje\u0107aj da mo\u017ee ono \u0161to mogu i druga djeca.<\/p>\n\n\n\n

U Mjesecu svjesnosti o SMA govorimo o \u017eivotima iza dijagnoze. O djeci koja se \u017eele igrati, plesati, dru\u017eiti i sanjati. O roditeljima koji \u017eele gledati svoju djecu kako odrastaju bez straha da \u0107e ih bolest definirati i ograni\u010davati.<\/p>\n\n\n\n

Budu\u0107nost se ne podrazumijeva. Zato je va\u017eno o njoj govoriti.<\/p>\n\n\n\n

#MjesecSMA #SMA #SpinalnaMi\u0161i\u0107naAtrofija<\/p>\n\n\n

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Josipina i Larina pri\u010da \u201eLara ima spinalnu mi\u0161i\u0107nu atrofiju, ali ona \u017eivi sto \u017eivota.\u201c Tako svoju k\u0107er opisuje Josipa Matija\u0161ec, majka i \u017eena koja i sama \u017eivi sa spinalnom mi\u0161i\u0107nom atrofijom. Lara je osmogodi\u0161nja djevoj\u010dica koja voli ples, more, plivanje, vatrogasce i svako dru\u017eenje. Obo\u017eava…<\/p>","protected":false},"author":3,"featured_media":6544,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"content-type":"","footnotes":""},"categories":[34],"tags":[],"class_list":["post-6515","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-rijetka-infoteka"],"yoast_head":"\nVi\u0161e od dijagnoze: pri\u010de ljudi koji \u017eive sa spinalnom mi\u0161i\u0107nom atrofijom - Hrvatski savez za rijetke bolesti<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/rijetke-bolesti.com\/en\/vise-od-dijagnoze-price-ljudi-koji-zive-sa-spinalnom-misicnom-atrofijom-2\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Vi\u0161e od dijagnoze: pri\u010de ljudi koji \u017eive sa spinalnom mi\u0161i\u0107nom atrofijom - Hrvatski savez za rijetke bolesti\" \/>\n<meta property=\"og:description\" content=\"Josipina i Larina pri\u010da \u201eLara ima spinalnu mi\u0161i\u0107nu atrofiju, ali ona \u017eivi sto \u017eivota.\u201c Tako svoju k\u0107er opisuje Josipa Matija\u0161ec, majka i \u017eena koja i sama \u017eivi sa spinalnom mi\u0161i\u0107nom atrofijom. Lara je osmogodi\u0161nja djevoj\u010dica koja voli ples, more, plivanje, vatrogasce i svako dru\u017eenje. 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