{"id":6444,"date":"2026-07-17T11:37:03","date_gmt":"2026-07-17T09:37:03","guid":{"rendered":"https:\/\/rijetke-bolesti.com\/?p=6444"},"modified":"2026-07-17T11:37:06","modified_gmt":"2026-07-17T09:37:06","slug":"vazan-korak-za-djecu-s-duchenneovom-misicnom-distrofijom-i-njihove-obitelji","status":"publish","type":"post","link":"https:\/\/rijetke-bolesti.com\/en\/vazan-korak-za-djecu-s-duchenneovom-misicnom-distrofijom-i-njihove-obitelji\/","title":{"rendered":"Va\u017ean korak za djecu s Duchenneovom mi\u0161i\u0107nom distrofijom i njihove obitelji"},"content":{"rendered":"<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"391\" height=\"592\" src=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2026\/07\/Duvyzat.png\" alt=\"\" class=\"wp-image-6446\" srcset=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2026\/07\/Duvyzat.png 391w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2026\/07\/Duvyzat-198x300.png 198w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2026\/07\/Duvyzat-8x12.png 8w\" sizes=\"auto, (max-width: 391px) 100vw, 391px\" \/><\/figure>\n<\/div>\n\n\n<p class=\"wp-block-paragraph\">Va\u017ean korak za djecu s Duchenneovom mi\u0161i\u0107nom distrofijom i njihove obitelji.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><br>Upravno vije\u0107e HZZO-a donijelo je 16.srpnja 2026. odluku o uvr\u0161tavanju lijeka Duvyzat (givinostat) na osnovnu listu lijekova HZZO-a. Time je od ju\u010der omogu\u0107ena dostupnost terapije za pokretne osobe s Duchenneovom mi\u0161i\u0107nom distrofijom u dobi od 6 godina i starije, sukladno odobrenoj indikaciji.<br>Ova odluka donosi novu nadu obiteljima koje se svakodnevno suo\u010davaju s izazovima ove rijetke i progresivne bolesti. Dostupnost inovativne terapije va\u017ean je iskorak prema kvalitetnijoj skrbi i boljoj budu\u0107nosti djece oboljele od Duchenneove mi\u0161i\u0107ne distrofije u Hrvatskoj.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><br>Kao Savez udruga za rijetke bolesti, zahvaljujemo svima koji su svojim radom, stru\u010dno\u0161\u0107u i ustrajno\u0161\u0107u pridonijeli da ovaj lijek postane dostupan hrvatskim pacijentima. Posebno zahvaljujemo obiteljima koje su svojim glasom i iskustvom pokazale koliko je pravodoban pristup lije\u010denju va\u017ean.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><br>Nastavljamo se zalagati za jo\u0161 bolju dostupnost terapija, kvalitetnu zdravstvenu skrb i podr\u0161ku svim osobama koje \u017eive s rijetkim bolestima u Hrvatskoj.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>","protected":false},"excerpt":{"rendered":"<p>Va\u017ean korak za djecu s Duchenneovom mi\u0161i\u0107nom distrofijom i njihove obitelji. Upravno vije\u0107e HZZO-a donijelo je 16.srpnja 2026. odluku o uvr\u0161tavanju lijeka Duvyzat (givinostat) na osnovnu listu lijekova HZZO-a. Time je od ju\u010der omogu\u0107ena dostupnost terapije za pokretne osobe s Duchenneovom mi\u0161i\u0107nom distrofijom u dobi&#8230;<\/p>","protected":false},"author":3,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"content-type":"","footnotes":""},"categories":[1],"tags":[],"class_list":["post-6444","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.0 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Va\u017ean korak za djecu s Duchenneovom mi\u0161i\u0107nom distrofijom i njihove obitelji - Hrvatski savez za rijetke bolesti<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/rijetke-bolesti.com\/en\/vazan-korak-za-djecu-s-duchenneovom-misicnom-distrofijom-i-njihove-obitelji\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Va\u017ean korak za djecu s Duchenneovom mi\u0161i\u0107nom distrofijom i njihove obitelji - Hrvatski savez za rijetke bolesti\" \/>\n<meta property=\"og:description\" content=\"Va\u017ean korak za djecu s Duchenneovom mi\u0161i\u0107nom distrofijom i njihove obitelji. Upravno vije\u0107e HZZO-a donijelo je 16.srpnja 2026. odluku o uvr\u0161tavanju lijeka Duvyzat (givinostat) na osnovnu listu lijekova HZZO-a. Time je od ju\u010der omogu\u0107ena dostupnost terapije za pokretne osobe s Duchenneovom mi\u0161i\u0107nom distrofijom u dobi...\" \/>\n<meta property=\"og:url\" content=\"https:\/\/rijetke-bolesti.com\/en\/vazan-korak-za-djecu-s-duchenneovom-misicnom-distrofijom-i-njihove-obitelji\/\" \/>\n<meta property=\"og:site_name\" content=\"Hrvatski savez za rijetke bolesti\" \/>\n<meta property=\"article:published_time\" content=\"2026-07-17T09:37:03+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-07-17T09:37:06+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2026\/07\/Duvyzat.png\" \/>\n\t<meta property=\"og:image:width\" content=\"391\" \/>\n\t<meta property=\"og:image:height\" content=\"592\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"sara\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"sara\" \/>\n\t<meta name=\"twitter:label2\" content=\"Estimated reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minute\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/rijetke-bolesti.com\/vazan-korak-za-djecu-s-duchenneovom-misicnom-distrofijom-i-njihove-obitelji\/\",\"url\":\"https:\/\/rijetke-bolesti.com\/vazan-korak-za-djecu-s-duchenneovom-misicnom-distrofijom-i-njihove-obitelji\/\",\"name\":\"Va\u017ean korak za djecu s Duchenneovom mi\u0161i\u0107nom distrofijom i njihove obitelji - Hrvatski savez za rijetke bolesti\",\"isPartOf\":{\"@id\":\"https:\/\/rijetke-bolesti.com\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/rijetke-bolesti.com\/vazan-korak-za-djecu-s-duchenneovom-misicnom-distrofijom-i-njihove-obitelji\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/rijetke-bolesti.com\/vazan-korak-za-djecu-s-duchenneovom-misicnom-distrofijom-i-njihove-obitelji\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2026\/07\/Duvyzat.png\",\"datePublished\":\"2026-07-17T09:37:03+00:00\",\"dateModified\":\"2026-07-17T09:37:06+00:00\",\"author\":{\"@id\":\"https:\/\/rijetke-bolesti.com\/#\/schema\/person\/aef3ba29d85f7c9772a22dda632784e7\"},\"breadcrumb\":{\"@id\":\"https:\/\/rijetke-bolesti.com\/vazan-korak-za-djecu-s-duchenneovom-misicnom-distrofijom-i-njihove-obitelji\/#breadcrumb\"},\"inLanguage\":\"en-GB\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/rijetke-bolesti.com\/vazan-korak-za-djecu-s-duchenneovom-misicnom-distrofijom-i-njihove-obitelji\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-GB\",\"@id\":\"https:\/\/rijetke-bolesti.com\/vazan-korak-za-djecu-s-duchenneovom-misicnom-distrofijom-i-njihove-obitelji\/#primaryimage\",\"url\":\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2026\/07\/Duvyzat.png\",\"contentUrl\":\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2026\/07\/Duvyzat.png\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/rijetke-bolesti.com\/vazan-korak-za-djecu-s-duchenneovom-misicnom-distrofijom-i-njihove-obitelji\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/rijetke-bolesti.com\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Va\u017ean korak za djecu s Duchenneovom mi\u0161i\u0107nom distrofijom i njihove obitelji\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/rijetke-bolesti.com\/#website\",\"url\":\"https:\/\/rijetke-bolesti.com\/\",\"name\":\"Hrvatski savez za rijetke bolesti\",\"description\":\"Za\u0161tita i unapre\u0111enje kvalitete \u017eivota osoba oboljelih\u00a0 od rijetkih bolesti\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/rijetke-bolesti.com\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-GB\"},{\"@type\":\"Person\",\"@id\":\"https:\/\/rijetke-bolesti.com\/#\/schema\/person\/aef3ba29d85f7c9772a22dda632784e7\",\"name\":\"sara\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-GB\",\"@id\":\"https:\/\/rijetke-bolesti.com\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/3d9e5c9f8d3713aa533765bf3ae12e233c75a6280581cc7b84aa6a481f87d6cd?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/3d9e5c9f8d3713aa533765bf3ae12e233c75a6280581cc7b84aa6a481f87d6cd?s=96&d=mm&r=g\",\"caption\":\"sara\"},\"url\":\"https:\/\/rijetke-bolesti.com\/en\/author\/sara\/\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Va\u017ean korak za djecu s Duchenneovom mi\u0161i\u0107nom distrofijom i njihove obitelji - Hrvatski savez za rijetke bolesti","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/rijetke-bolesti.com\/en\/vazan-korak-za-djecu-s-duchenneovom-misicnom-distrofijom-i-njihove-obitelji\/","og_locale":"en_GB","og_type":"article","og_title":"Va\u017ean korak za djecu s Duchenneovom mi\u0161i\u0107nom distrofijom i njihove obitelji - Hrvatski savez za rijetke bolesti","og_description":"Va\u017ean korak za djecu s Duchenneovom mi\u0161i\u0107nom distrofijom i njihove obitelji. Upravno vije\u0107e HZZO-a donijelo je 16.srpnja 2026. odluku o uvr\u0161tavanju lijeka Duvyzat (givinostat) na osnovnu listu lijekova HZZO-a. Time je od ju\u010der omogu\u0107ena dostupnost terapije za pokretne osobe s Duchenneovom mi\u0161i\u0107nom distrofijom u dobi...","og_url":"https:\/\/rijetke-bolesti.com\/en\/vazan-korak-za-djecu-s-duchenneovom-misicnom-distrofijom-i-njihove-obitelji\/","og_site_name":"Hrvatski savez za rijetke bolesti","article_published_time":"2026-07-17T09:37:03+00:00","article_modified_time":"2026-07-17T09:37:06+00:00","og_image":[{"width":391,"height":592,"url":"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2026\/07\/Duvyzat.png","type":"image\/png"}],"author":"sara","twitter_card":"summary_large_image","twitter_misc":{"Written by":"sara","Estimated reading time":"1 minute"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/rijetke-bolesti.com\/vazan-korak-za-djecu-s-duchenneovom-misicnom-distrofijom-i-njihove-obitelji\/","url":"https:\/\/rijetke-bolesti.com\/vazan-korak-za-djecu-s-duchenneovom-misicnom-distrofijom-i-njihove-obitelji\/","name":"Va\u017ean korak za djecu s Duchenneovom mi\u0161i\u0107nom distrofijom i njihove obitelji - Hrvatski savez za rijetke bolesti","isPartOf":{"@id":"https:\/\/rijetke-bolesti.com\/#website"},"primaryImageOfPage":{"@id":"https:\/\/rijetke-bolesti.com\/vazan-korak-za-djecu-s-duchenneovom-misicnom-distrofijom-i-njihove-obitelji\/#primaryimage"},"image":{"@id":"https:\/\/rijetke-bolesti.com\/vazan-korak-za-djecu-s-duchenneovom-misicnom-distrofijom-i-njihove-obitelji\/#primaryimage"},"thumbnailUrl":"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2026\/07\/Duvyzat.png","datePublished":"2026-07-17T09:37:03+00:00","dateModified":"2026-07-17T09:37:06+00:00","author":{"@id":"https:\/\/rijetke-bolesti.com\/#\/schema\/person\/aef3ba29d85f7c9772a22dda632784e7"},"breadcrumb":{"@id":"https:\/\/rijetke-bolesti.com\/vazan-korak-za-djecu-s-duchenneovom-misicnom-distrofijom-i-njihove-obitelji\/#breadcrumb"},"inLanguage":"en-GB","potentialAction":[{"@type":"ReadAction","target":["https:\/\/rijetke-bolesti.com\/vazan-korak-za-djecu-s-duchenneovom-misicnom-distrofijom-i-njihove-obitelji\/"]}]},{"@type":"ImageObject","inLanguage":"en-GB","@id":"https:\/\/rijetke-bolesti.com\/vazan-korak-za-djecu-s-duchenneovom-misicnom-distrofijom-i-njihove-obitelji\/#primaryimage","url":"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2026\/07\/Duvyzat.png","contentUrl":"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2026\/07\/Duvyzat.png"},{"@type":"BreadcrumbList","@id":"https:\/\/rijetke-bolesti.com\/vazan-korak-za-djecu-s-duchenneovom-misicnom-distrofijom-i-njihove-obitelji\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/rijetke-bolesti.com\/"},{"@type":"ListItem","position":2,"name":"Va\u017ean korak za djecu s Duchenneovom mi\u0161i\u0107nom distrofijom i njihove obitelji"}]},{"@type":"WebSite","@id":"https:\/\/rijetke-bolesti.com\/#website","url":"https:\/\/rijetke-bolesti.com\/","name":"Hrvatski savez za rijetke bolesti","description":"Za\u0161tita i unapre\u0111enje kvalitete \u017eivota osoba oboljelih\u00a0 od rijetkih bolesti","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/rijetke-bolesti.com\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"en-GB"},{"@type":"Person","@id":"https:\/\/rijetke-bolesti.com\/#\/schema\/person\/aef3ba29d85f7c9772a22dda632784e7","name":"sara","image":{"@type":"ImageObject","inLanguage":"en-GB","@id":"https:\/\/rijetke-bolesti.com\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/3d9e5c9f8d3713aa533765bf3ae12e233c75a6280581cc7b84aa6a481f87d6cd?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/3d9e5c9f8d3713aa533765bf3ae12e233c75a6280581cc7b84aa6a481f87d6cd?s=96&d=mm&r=g","caption":"sara"},"url":"https:\/\/rijetke-bolesti.com\/en\/author\/sara\/"}]}},"_links":{"self":[{"href":"https:\/\/rijetke-bolesti.com\/en\/wp-json\/wp\/v2\/posts\/6444","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/rijetke-bolesti.com\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/rijetke-bolesti.com\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/rijetke-bolesti.com\/en\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/rijetke-bolesti.com\/en\/wp-json\/wp\/v2\/comments?post=6444"}],"version-history":[{"count":2,"href":"https:\/\/rijetke-bolesti.com\/en\/wp-json\/wp\/v2\/posts\/6444\/revisions"}],"predecessor-version":[{"id":6447,"href":"https:\/\/rijetke-bolesti.com\/en\/wp-json\/wp\/v2\/posts\/6444\/revisions\/6447"}],"wp:attachment":[{"href":"https:\/\/rijetke-bolesti.com\/en\/wp-json\/wp\/v2\/media?parent=6444"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/rijetke-bolesti.com\/en\/wp-json\/wp\/v2\/categories?post=6444"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/rijetke-bolesti.com\/en\/wp-json\/wp\/v2\/tags?post=6444"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}