{"id":6313,"date":"2026-04-29T08:22:00","date_gmt":"2026-04-29T06:22:00","guid":{"rendered":"https:\/\/rijetke-bolesti.com\/?p=6313"},"modified":"2026-04-20T10:00:26","modified_gmt":"2026-04-20T08:00:26","slug":"29-travnja-dan-osoba-bez-dijagnoze-undiagnosed-day","status":"publish","type":"post","link":"https:\/\/rijetke-bolesti.com\/en\/29-travnja-dan-osoba-bez-dijagnoze-undiagnosed-day\/","title":{"rendered":"29. travnja \u2013 Dan osoba bez dijagnoze (Undiagnosed Day)"},"content":{"rendered":"<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-full is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"1005\" height=\"782\" src=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2026\/04\/fsger.jpg\" alt=\"\" class=\"wp-image-6314\" style=\"aspect-ratio:1.285171284454113;width:636px;height:auto\" srcset=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2026\/04\/fsger.jpg 1005w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2026\/04\/fsger-300x233.jpg 300w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2026\/04\/fsger-768x598.jpg 768w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2026\/04\/fsger-15x12.jpg 15w\" sizes=\"auto, (max-width: 1005px) 100vw, 1005px\" \/><\/figure>\n<\/div>\n\n\n<p>Svake godine 29. travnja obilje\u017eava se Dan osoba koje \u017eive bez dijagnoze \u2013 Undiagnosed Day, posve\u0107en milijunima ljudi diljem svijeta koji jo\u0161 uvijek nemaju odgovor na svoje zdravstvene probleme.<\/p>\n\n\n\n<p>Procjenjuje se da \u010dak 350 milijuna ljudi \u017eivi s nedijagnosticiranom bole\u0161\u0107u, \u010desto godinama prolaze\u0107i kroz slo\u017een i iscrpljuju\u0107i \u201edijagnosti\u010dki put\u201c bez jasnih odgovora.<\/p>\n\n\n\n<p>\u0160to zna\u010di \u017eivjeti bez dijagnoze?<\/p>\n\n\n\n<p>Nedijagnosticirane bolesti su stanja koja se ne mogu objasniti standardnim medicinskim postupcima. To mogu biti:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>izuzetno rijetke bolesti<\/li>\n\n\n\n<li>jo\u0161 neprepoznati klini\u010dki entiteti<\/li>\n\n\n\n<li>bolesti \u010diji uzrok jo\u0161 nije poznat<\/li>\n<\/ul>\n\n\n\n<p>Za oboljele i njihove obitelji to zna\u010di \u017eivot u neizvjesnosti \u2013 bez jasne prognoze, bez ciljanog lije\u010denja i \u010desto bez adekvatne podr\u0161ke.<\/p>\n\n\n\n<p>Za\u0161to je Undiagnosed Day va\u017ean?<\/p>\n\n\n\n<p>Ovaj dan ima nekoliko klju\u010dnih ciljeva:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>podizanje svijesti o izazovima \u017eivota bez dijagnoze<\/li>\n\n\n\n<li>prepoznavanje osoba i obitelji koje prolaze kroz dugotrajan proces tra\u017eenja odgovora<\/li>\n\n\n\n<li>poticanje razvoja dijagnosti\u010dkih metoda, posebno u podru\u010dju genomike<\/li>\n\n\n\n<li>ja\u010danje suradnje izme\u0111u pacijenata, stru\u010dnjaka i istra\u017eiva\u010da<\/li>\n<\/ul>\n\n\n\n<p>Istovremeno, Undiagnosed Day odaje priznanje svima koji rade na pronalasku dijagnoze \u2013 lije\u010dnicima, znanstvenicima i organizacijama \u2013 ali i odaje po\u010dast onima koji su izgubili \u017eivot bez odgovora.<\/p>\n\n\n\n<p>\u201eDijagnosti\u010dka odiseja\u201c<\/p>\n\n\n\n<p>Put do dijagnoze kod rijetkih i nedijagnosticiranih bolesti \u010desto traje godinama. U tom procesu obitelji prolaze kroz brojne pretrage, razli\u010dite zdravstvene sustave i \u010desto pogre\u0161ne dijagnoze. Upravo zato se ovaj put naziva \u201edijagnosti\u010dka odiseja\u201c \u2013 dug, neizvjestan i emocionalno zahtjevan.<\/p>\n\n\n\n<p>Napredak u genetici i me\u0111unarodnim mre\u017eama poput Undiagnosed Diseases Network omogu\u0107uje sve ve\u0107i broj postavljenih dijagnoza, ali mnogi i dalje \u010dekaju svoj odgovor.<\/p>\n\n\n\n<p>Undiagnosed Day: Glas za one koji jo\u0161 uvijek tra\u017ee dijagnozu<\/p>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"1024\" src=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2026\/04\/01_Its-a-Movement-4-1024x1024.jpg\" alt=\"\" class=\"wp-image-6316\" style=\"width:580px;height:auto\" srcset=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2026\/04\/01_Its-a-Movement-4-1024x1024.jpg 1024w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2026\/04\/01_Its-a-Movement-4-300x300.jpg 300w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2026\/04\/01_Its-a-Movement-4-150x150.jpg 150w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2026\/04\/01_Its-a-Movement-4-768x768.jpg 768w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2026\/04\/01_Its-a-Movement-4-12x12.jpg 12w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2026\/04\/01_Its-a-Movement-4-660x660.jpg 660w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2026\/04\/01_Its-a-Movement-4.jpg 1080w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n<\/div>\n\n\n<p>Izvor:<\/p>\n\n\n\n<p><a href=\"https:\/\/udnf.org\/about-udnf\/\">https:\/\/udnf.org\/about-udnf\/<\/a><\/p>\n\n\n\n<p><a href=\"https:\/\/undiagnosed-day.org\">https:\/\/undiagnosed-day.org<\/a><\/p>\n\n\n\n<p><a href=\"https:\/\/rareundiagnosed.org\/undiagnosed-rare-disease-day-april-29-2025\/\">https:\/\/rareundiagnosed.org\/undiagnosed-rare-disease-day-april-29-2025\/<\/a><\/p>\n\n\n\n<p><a href=\"https:\/\/www.genomenon.com\/blog\/undiagnosed-day-journey-without-map-fight-answers\">https:\/\/www.genomenon.com\/blog\/undiagnosed-day-journey-without-map-fight-answers<\/a><\/p>\n\n\n\n\n\n<p><\/p>","protected":false},"excerpt":{"rendered":"<p>Svake godine 29. travnja obilje\u017eava se Dan osoba koje \u017eive bez dijagnoze \u2013 Undiagnosed Day, posve\u0107en milijunima ljudi diljem svijeta koji jo\u0161 uvijek nemaju odgovor na svoje zdravstvene probleme. Procjenjuje se da \u010dak 350 milijuna ljudi \u017eivi s nedijagnosticiranom bole\u0161\u0107u, \u010desto godinama prolaze\u0107i kroz slo\u017een&#8230;<\/p>","protected":false},"author":3,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"content-type":"","footnotes":""},"categories":[1],"tags":[],"class_list":["post-6313","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.0 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>29. travnja \u2013 Dan osoba bez dijagnoze (Undiagnosed Day) - Hrvatski savez za rijetke bolesti<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/rijetke-bolesti.com\/en\/29-travnja-dan-osoba-bez-dijagnoze-undiagnosed-day\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"29. travnja \u2013 Dan osoba bez dijagnoze (Undiagnosed Day) - Hrvatski savez za rijetke bolesti\" \/>\n<meta property=\"og:description\" content=\"Svake godine 29. travnja obilje\u017eava se Dan osoba koje \u017eive bez dijagnoze \u2013 Undiagnosed Day, posve\u0107en milijunima ljudi diljem svijeta koji jo\u0161 uvijek nemaju odgovor na svoje zdravstvene probleme. 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