Svjetski dan hemofilije obilje\u017eava se 17. travnja, na ro\u0111endan Franka Schnabela, osniva\u010da Svjetske federacije za hemofiliju, s ciljem podizanja svijesti o ovoj nasljednoj bolesti i va\u017enosti pravovremene dijagnoze i lije\u010denja.<\/p>\n\n\n
\n<\/figure>\n<\/div>\n\n\n
Hemofilija je poreme\u0107aj zgru\u0161avanja krvi zbog kojeg dolazi do produljenog ili spontanog krvarenja. Naj\u010de\u0161\u0107e je uzrokovana nedostatkom faktora zgru\u0161avanja \u2013 faktora VIII kod hemofilije A i faktora IX kod hemofilije B. Bolest se prenosi X-vezanim naslje\u0111ivanjem, pa naj\u010de\u0161\u0107e poga\u0111a mu\u0161karce, dok su \u017eene uglavnom nositeljice, iako se u odre\u0111enom broju slu\u010dajeva javlja i bez obiteljske anamneze zbog novih genetskih mutacija.<\/p>\n\n\n\n
Procjenjuje se da se hemofilija javlja kod otprilike jednog na 10 000 novoro\u0111ene djece, pri \u010demu je hemofilija A znatno \u010de\u0161\u0107a. Te\u017eina bolesti ovisi o razini faktora zgru\u0161avanja u krvi \u2013 kod te\u017eih oblika mogu se pojaviti spontana krvarenja, osobito u zglobove i mi\u0161i\u0107e, dok se kod bla\u017eih oblika simptomi naj\u010de\u0161\u0107e javljaju nakon ozljeda ili kirur\u0161kih zahvata. Uobi\u010dajeni znakovi uklju\u010duju u\u010destala i dugotrajna krvarenja, bol i oticanje zglobova te krvarenja u mi\u0161i\u0107e i druga tkiva, a u najte\u017eim slu\u010dajevima mogu nastati i \u017eivotno ugro\u017eavaju\u0107a unutarnja krvarenja.<\/p>\n\n\n\n
Iako hemofilija jo\u0161 uvijek nije izlje\u010diva, suvremeni pristupi lije\u010denju omogu\u0107uju dobru kontrolu bolesti. Terapija se temelji na nadoknadi nedostaju\u0107ih faktora zgru\u0161avanja, \u010dime se sprje\u010davaju ili zaustavljaju krvarenja. Sve ve\u0107i naglasak stavlja se na preventivno lije\u010denje kako bi se smanjio broj krvarenja i sprije\u010dile dugoro\u010dne komplikacije. Zahvaljuju\u0107i napretku medicine, osobe s hemofilijom danas mogu voditi kvalitetan i aktivan \u017eivot uz odgovaraju\u0107u zdravstvenu skrb.<\/p>\n\n\n\n
Obilje\u017eavanje ovog dana podsje\u0107a na va\u017enost edukacije, rane dijagnoze i dostupnosti lije\u010denja, ali i na potrebu pru\u017eanja kontinuirane podr\u0161ke osobama koje \u017eive s hemofilijom i njihovim obiteljima.<\/p>","protected":false},"excerpt":{"rendered":"
Svjetski dan hemofilije obilje\u017eava se 17. travnja, na ro\u0111endan Franka Schnabela, osniva\u010da Svjetske federacije za hemofiliju, s ciljem podizanja svijesti o ovoj nasljednoj bolesti i va\u017enosti pravovremene dijagnoze i lije\u010denja. Hemofilija je poreme\u0107aj zgru\u0161avanja krvi zbog kojeg dolazi do produljenog ili spontanog krvarenja. Naj\u010de\u0161\u0107e je…<\/p>","protected":false},"author":3,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"content-type":"","footnotes":""},"categories":[1],"tags":[],"class_list":["post-6306","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"yoast_head":"\n
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