{"id":5990,"date":"2026-03-05T15:22:24","date_gmt":"2026-03-05T13:22:24","guid":{"rendered":"https:\/\/rijetke-bolesti.com\/?p=5990"},"modified":"2026-03-24T12:27:24","modified_gmt":"2026-03-24T10:27:24","slug":"obiljezavanje-medunarodnog-dana-rijetkih-bolesti-2026","status":"publish","type":"post","link":"https:\/\/rijetke-bolesti.com\/en\/obiljezavanje-medunarodnog-dana-rijetkih-bolesti-2026\/","title":{"rendered":"#HugForRare \u2013 Marking International Rare Disease Day 2026"},"content":{"rendered":"

On the occasion of marking International Rare Disease Day 2026, the Croatian Alliance for Rare
Diseases organized a national public health campaign titled \u201cHug for Rare.\u201d The campaign
was carried out with the aim of raising public awareness about rare diseases, the challenges faced
by those affected and their families, and the importance of solidarity, understanding, and timely support.
Through a combination of media activities and public events in local communities, the campaign
sought to bring the topic of rare diseases closer to the general public and encourage active citizen engagement.
This year, the overarching \u201cHug for Rare\u201d campaign was particularly focused on the issue of equal access
to therapy for people with rare diseases in the Republic of Croatia, regardless of their place of residence.
The goal of this focus is to encourage dialogue and cooperation among all stakeholders in the healthcare system
toward further improving access to therapies, while maintaining a high level of safety and quality of care.<\/p>\n\n\n\n


Implemented activities:
1. MEDIA CAMPAIGN<\/strong>
During February, a comprehensive media campaign was carried out, encompassing communication
through both digital and traditional channels. The communication focused on bringing the everyday
challenges of living with a rare disease closer to the public, as well as inviting citizens to show symbolic support by
participating in the campaign.
Activities included regular posts of informative and educational content on the Alliance\u2019s social media channels,
sharing personal stories and testimonies of patients and their family members, creating and distributing
promotional materials, issuing press releases and collaborating with journalists, as well as media appearances
and interviews featuring Alliance representatives (links provided in the report annex).
Additionally, a public call to action was launched, inviting all citizens to photograph their \u201chugs for rare\"
throughout February and share them on their social media, accompanied by short messages or videos using the hashtag #HugForRare.<\/p>\n\n\n\n


2. CENTRAL EVENT <\/strong>\u2013 Cvjetni Square (Petar Preradovi\u0107 Square), Zagreb
The central public event took place on Saturday, February 28, at Cvjetni Square in Zagreb, from 11:30 AM to 2:00 PM.
A large number of citizens, families, Alliance representatives, healthcare
professionals, and public figures attended the event, showing their support for people living with rare diseases
through symbolic \u201chug\u201d photographs. The event received media coverage and was documented through social media
and national outlets.
The program included a performance by the Plesni punktovi Zagreb dance group, whose short act
expressed support for peers living with rare diagnoses. An educational corner for children was also organized and led by students from the University of Zagreb School of Medicine. Through adapted activities and conversations
with children and parents, the focus was on understanding, acceptance of differences, and solidarity.
The campaign\u2019s recognizable symbol, the zebra mascot, delighted the youngest participants and encouraged everyone present
to take photos and share hugs.
We are especially pleased that this year the final events were also held in Osijek, organized by our
member associations HAE Croatia, Gaucher Croatia, and Anderson-Fabry Croatia, as well as in Daruvar,
co-organized with the Niemann-Pick Croatia Association.
The \u201cHug for Rare\u201d campaign has also become recognizable in countries across the region, with hugs shared in support
of people with rare diseases in North Macedonia, Bosnia and Herzegovina, Serbia, Republika Srpska, and Montenegro.
Photos from the event can be found in the appendix to the report.<\/p>\n\n\n\n


3. INVOLVEMENT OF SCHOOLS AND KINDERGARTENS<\/strong>
During February, schools and kindergartens across Croatia will be invited to take part in the campaign
through educational activities, messages of support, and symbolic \u201chugs for rare,\u201d further encouraging the development
of empathy and inclusiveness among children and young people.
The \u201cHug for Rare\u201d campaign successfully achieved its objectives and confirmed the importance of continuous
public health action, education, and advocacy for the rights of people living with rare diseases.
The activities carried out have shown that direct communication with citizens, combined with a strong media presence,
significantly contributes to raising awareness and strengthening solidarity within the community.
The Croatian Alliance for Rare Diseases will continue implementing similar initiatives aimed at improving the quality
of life of people living with rare diseases and ensuring their full social inclusion.<\/p>\n\n\n\n


4. SYMBOLIC SUPPORT FROM CROATIAN CITIES<\/strong>
As a sign of support for people living with rare diseases and their families, a large number of cities across Croatia
illuminated their landmarks in pink.
<\/p>\n\n\n\n

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PATRONAGES:
City of Zagreb \u2013 Mayor Tomislav Toma\u0161evi\u0107
Ministry of Labour, Pension System, Family and Social Policy
Ministry Of Health<\/h3>\n\n\n\n


We thank the City of Zagreb for co-organizing the event\u2014especially the Office for Social Protection, Health, Veterans, and Persons with Disabilities.<\/strong><\/p>\n\n\n\n

<\/div>\n\n\n\n

Special thanks to everyone who supported us and made this event possible:<\/h3>\n\n\n\n
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Photos from Cvjetni Square in Zagreb:<\/h3>\n\n\n\n
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<\/div>\n\n\n\n

PRESS CLIPPING<\/h3>\n\n\n\n

Online news (text articles) \/ news portals<\/strong> <\/p>\n\n\n\n

https:\/\/www.24sata.hr\/news\/andelina-2-ima-vrlo-rijetku-bolest-roditelji-u-bostonu-postoji-nada-da-ona-ozdravi-1106631<\/a><\/p>\n\n\n\n

https:\/\/www.novilist.hr\/novosti\/hrvatska\/stipo-32-boluje-od-rijetke-neuroloske-bolesti-za-koju-postoji-lijek-hzzo-ga-odbija-preskupo-nam-je<\/a><\/p>\n\n\n\n

https:\/\/glas-slavonije.hr\/novosti\/hrvatska\/2026\/02\/13\/hrvatska-odobrava-skupe-lijekove-po-isplativosti-eu-vrednuje-i-kvalitetu-zivota-746382<\/a><\/p>\n\n\n\n

https:\/\/www.nacional.hr\/odobren-je-u-eu-hzzo-odbio-stipu-32-zbog-cijene-lijeka-za-rijetku-neurolosku-bolest-preskupo-je<\/a><\/p>\n\n\n\n

https:\/\/www.telegram.hr\/vijesti\/mladi-splicanin-ima-rijetku-bolest-bescutni-hzzo-mu-odbija-platiti-lijek-ne-moze-znate-vi-koliko-to-kosta<\/a><\/p>\n\n\n\n

https:\/\/krenizdravo.dnevnik.hr\/korisno\/najave\/oni-zive-s-rijetkim-bolestima-a-evo-kako-im-svi-mozemo-pomoci-vec-danas<\/a><\/p>\n\n\n\n

https:\/\/fenix-magazin.de\/zagrli-za-rijetke-zagrljajem-pokazimo-podrsku-osobama-s-rijetkim-bolestima<\/a><\/p>\n\n\n\n

https:\/\/dalmatinskiportal.hr\/zdravlje\/zagrli-za-rijetke–krajem-veljace-se-obiljezava-medunarodni-dan-rijetkih-bolesti\/261727<\/a><\/p>\n\n\n\n

https:\/\/zdravljeija.hr\/zdravlje\/2026\/02\/19\/mihaela-sogoric-kada-bolujete-od-hae-svaki-je-dan-nepredvidljiv-586174<\/a><\/p>\n\n\n\n

https:\/\/www.glasistre.hr\/hrvatska\/2026\/02\/13\/postoji-lijek-ali-hzzo-odbija-pomoci-oboljelom-32-godisnjaku-1050642<\/a><\/p>\n\n\n\n

https:\/\/dalmatinskiportal.hr\/zdravlje\/hrvatskim-pacijentima-s-rijetkim-bolestima-nisu-dostupne-sve-ema-odobrene-terapije\/261813<\/a><\/p>\n\n\n\n

https:\/\/www.jutarnji.hr\/vijesti\/hrvatska\/savez-trazi-fond-za-rijetke-bolesti-po-uzoru-na-sloveniju-15681145?cx_linkref=jl_home_najnovije<\/a><\/p>\n\n\n\n

https:\/\/generacija.hr\/mladi\/pokazimo-podrsku-osobama-s-rijetkim-bolestima-zagrljaj-je-jednostavan-cin-ali-snazna-poruka<\/a><\/p>\n\n\n\n

https:\/\/prigorski.hr\/savez-za-rijetke-bolesti-trazi-uspostavu-fonda-za-lijecenje<\/a><\/p>\n\n\n\n

https:\/\/www.naturala.hr\/zagrli-za-rijetke-2026<\/a><\/p>\n\n\n\n

https:\/\/medjimurjepress.net\/vijesti\/najave\/kampanja-zagrli-za-rijetke-28-veljace<\/a><\/p>\n\n\n\n

https:\/\/krenizdravo.dnevnik.hr\/zdravlje\/bolesti-zdravlje\/iza-dijagnoze-stoji-obitelj-stvarna-svakodnevica-zivota-s-rijetkom-bolescu?fbclid=Iwb21leAQE3Y9jbGNrBATdBWV4dG4DYWVtAjExAHNydGMGYXBwX2lkDDM1MDY4NTUzMTcyOAABHiUXQLKDUAdU6zG0PT0M_bUrCq7WHGleLeFCfleigptfllCl0UidqQovzItQ_aem_0fbHXQymYPQcIhPpwiKh2A<\/a><\/p>\n\n\n\n

https:\/\/www.zagreb.info\/zagrebacke-price\/majka-sestogodisnje-marte-najgore-je-gledati-kako-ti-dijete-svakim-danom-propada\/814418<\/a><\/p>\n\n\n\n

https:\/\/www.zagreb.info\/magazin\/medunarodni-dan-rijetkih-bolesti-simbol-zebra-hrvatska\/816533<\/a><\/p>\n\n\n\n

https:\/\/www.zagreb.info\/zagrebacke-price\/rijetke-bolesti-koje-je-tesko-prepoznati-a-muce-brojne-hrvate-tada-zapocinju-prave-borbe\/814205<\/a><\/p>\n\n\n\n

https:\/\/www.crolens.hr\/c\/slovenija-uvodi-fond-za-rijetke-bolesti-hrvatski-pacijenti-i-dalje-bez-sustavne-zastite<\/a><\/p>\n\n\n\n

https:\/\/mojzagreb.info\/zagreb\/hrvatskim-pacijentima-s-rijetkim-bolestima-nisu-dostupne-sve-ema-odobrene-terapije-slovenija-uvodi-poseban-fond-za-napredna-lije%C4%8Denjahttps:\/\/www.novilist.hr\/novosti\/hrvatska\/slovenija-uspostavila-sustavni-model-financiranja-rijetkih-bolesti-dok-hrvatska-nema-ni-poseban-fond-ni-puni-pristup-ema-terapijama\/?fbclid=IwY2xjawQE_91leHRuA2FlbQIxMQBzcnRjBmFwcF9pZBAyMjIwMzkxNzg4MjAwODkyAAEerrlyE4qx624IaI9bFaxFTTD_Ko0xt0Tr6UfClKdp35tBhIgMP5oLVQaVDcc_aem_IT9pcdkMHCclTvVL1Fj-8A<\/a> <\/p>\n\n\n\n

https:\/\/www.hrv.hr\/clanak\/savez-za-rijetke-bolesti-trazi-uspostavu-fonda-za-lijecenje<\/a><\/p>\n\n\n\n

https:\/\/zadarskilist.novilist.hr\/novosti\/hrvatska\/savez-za-rijetke-bolesti-trazi-uspostavu-fonda-za-lijecenje<\/a><\/p>\n\n\n\n

https:\/\/freedom.hr\/hrvatski-savez-poziva-na-fond-za-rijetke-bolesti-po-uzoru-na-sloveniju<\/a><\/p>\n\n\n\n

https:\/\/h-alter.org\/vijesti\/hrvatskim-pacijentima-s-rijetkim-bolestima-nisu-dostupne-sve-ema-odobrene-terapije<\/a><\/p>\n\n\n\n

https:\/\/www.nacional.hr\/zagrli-za-rijetke-ukljucimo-se-u-kampanju-povodom-medunarodnog-dana-rijetkih-bolesti<\/a><\/p>\n\n\n\n

https:\/\/miss7zdrava.24sata.hr\/zdravlje\/hrvatski-savez-za-rijetke-bolesti-poziva-na-osnivanje-posebnog-fonda-za-lijecenje-28504<\/a><\/p>\n\n\n\n

https:\/\/net.hr\/magazin\/zdravlje\/cak-95-posto-oboljelih-nema-dostupnu-terapiju-na-dijagnozu-se-ceka-i-do-sedam-godina-dc21f453-4828-11f0-be08-9600040c8f8e<\/a><\/p>\n\n\n\n

https:\/\/www.radionasice.hr\/zagrli-za-rijetke<\/a><\/p>\n\n\n\n

https:\/\/www.klikaj.hr\/savez-za-rijetke-bolesti-trazi-uspostavu-fonda-za-lijecenje<\/a><\/p>\n\n\n\n

https:\/\/radio105.hr\/regionalna-kampanja-solidarnosti-zagrljaj-kao-simbol-podrske-oboljelima-od-rijetkih-bolesti\/<\/a><\/p>\n\n\n\n

https:\/\/www.slowliving.hr\/kampanja-zagrli-za-rijetke-poziva-nas-da-zagrljajem-pokazemo-podrsku-osobama-s-rijetkim-bolestima<\/a><\/p>\n\n\n\n

https:\/\/generacija.hr\/intervju-tjedna\/jadranka-boluje-od-rijetke-bolesti-nece-mi-oduzeti-osmijeh-a-grlit-cu-dok-budem-mogla-rukama-i-srcem<\/a><\/p>\n\n\n\n

https:\/\/ordinacija.vecernji.hr\/zdravlje\/u-hrvatskoj-vise-od-250-tisuca-ljudi-zivi-s-rijetkim-bolestima-to-je-javnozdravstveni-i-socijalni-izazov<\/a><\/p>\n\n\n\n

https:\/\/epodravina.hr\/video-koprivnica-grli-za-rijetke-pogledajte-kako-padaju-zagrljaji-u-gradskoj-upravi<\/a><\/p>\n\n\n\n

https:\/\/www.regionalexpress.hr\/site\/more\/rotor-u-shijani-u-subotu-svijetli-ruzhichastom-bojom-za-rijetke-bolesti<\/a><\/p>\n\n\n\n

https:\/\/posi.hr\/javno-priopcenje-pravobranitelja-uza-osobe-s-invaliditetom-povodom-28-veljace-medunarodnog-dana-rijetkih-bolesti-dostupnost-terapije-za-rijetke-bolesti<\/a><\/p>\n\n\n\n

https:\/\/posi.hr\/javno-priopcenje-pravobranitelja-uza-osobe-s-invaliditetom-povodom-28-veljace-medunarodnog-dana-rijetkih-bolesti-dostupnost-terapije-za-rijetke-bolesti<\/a><\/p>\n\n\n\n

https:\/\/in-portal.hr\/sara-bajlo-rijetke-bolesti-pitanje-su-zrelosti-drustva<\/a><\/p>\n\n\n\n

https:\/\/www.jutarnji.hr\/zivim\/rastem\/oko-250-000-hrvata-zivi-s-rijetkim-bolestima-iza-svake-dijagnoze-kriju-se-borbe-koje-zasluzuju-vise-paznje-15683744<\/a><\/p>\n\n\n\n

https:\/\/story.hr\/roditelji\/zdravlje-i-prehrana\/a390184\/zagrli-za-rijetke-podrska-djeci-i-obiteljima-s-rijetkim-bolestima-u-hrvatskoj.html<\/a><\/p>\n\n\n\n

https:\/\/riportal.net.hr\/rijeka\/rijecke-znamenitosti-ove-subote-u-ruzicastom-na-medunarodni-dan-rijetkih-bolesti\/533675<\/a><\/p>\n\n\n\n

https:\/\/ordinacija.vecernji.hr\/zdravlje\/medunarodni-dan-rijetkih-bolesti-izazovi-nisu-rijetki-a-podrska-je-kljucna-za-kvalitetu-zivota<\/a><\/p>\n\n\n\n

https:\/\/www.novilist.hr\/rijeka-regija\/u-subotu-ce-rijecke-gradske-znamenitosti-biti-obucene-u-ruzicastu-boju<\/a><\/p>\n\n\n\n

https:\/\/magazin.hrt.hr\/zdravlje\/savez-za-rijetke-bolesti-potrebna-sustavna-rjesenja-za-oboljele-12594689<\/a><\/p>\n\n\n\n

https:\/\/krenizdravo.dnevnik.hr\/zdravlje\/bolesti-zdravlje\/rijetke-bolesti-u-hrvatskoj-sto-treba-mijenjati-u-sustavu<\/a><\/p>\n\n\n\n

https:\/\/www.google.com\/amp\/s\/miss7zdrava.24sata.hr\/amp\/zdravlje\/savez-za-rijetke-bolesti-potrebna-sustavna-rjesenja-za-oboljele-28560<\/a><\/p>\n\n\n\n

https:\/\/www.glasistre.hr\/hrvatska\/2026\/02\/28\/zagrli-za-rijetke-u-hrvatskoj-vise-od-250000-ljudi-zivi-s-rijetkim-bolestima-traze-se-sustavna-1053725<\/a><\/p>\n\n\n\n

https:\/\/regionalni.com\/grad-varazdinske-toplice-uz-osobe-s-rijetkim-bolestima<\/a><\/p>\n\n\n\n

https:\/\/www.cybermed.hr\/vijesti\/oboljeli_od_rijetkih_bolesti_trebaju_dostupnu_skrb_u_skladu_s_europskim_standardima_i_snaznu_sustavnu_podrsku<\/a><\/p>\n\n\n\n

https:\/\/www.lika-online.hr\/toplina-usred-veljace-pogledajte-kako-je-zagreb-zagrlio-one-kojima-je-podrska-najpotrebnija<\/a><\/p>\n\n\n\n

https:\/\/www.tportal.hr\/vijesti\/clanak\/vise-od-200-000-ljudi-zivi-s-nekom-rijetkom-bolesti-potrebne-su-dostupne-terapije-i-bolja-koordinacija-skrbi-20260228<\/a><\/p>\n\n\n\n

https:\/\/dulist.hr\/velika-onofrijeva-fontana-u-znaku-medunarodnog-dana-rijetkih-bolesti\/1005294<\/a><\/p>\n\n\n\n

https:\/\/www.tportal.hr\/lifestyle\/clanak\/izazovi-nisu-rijetki-a-podrska-je-kljucna-za-kvalitetu-zivota-20260303<\/a><\/p>\n\n\n\n

NACIONAL \u2013 tiskano izdanje od 24.velja\u010de, \u010dlanak na dvije strane  ‘Gradimo sustav u kojem  dijete s rijetkom bole\u0161\u0107u ne\u0107e ovisiti o sre\u0107i , nego o podr\u0161ci’ <\/p>\n\n\n\n

<\/div>\n\n\n\n

RADIO I AUDIO IZVJE\u0160TAJI\/EMISIJE<\/h3>\n\n\n\n

HRT Normalan \u017divot, Ana Toma\u0161kovi\u0107 <\/strong><\/p>\n\n\n\n

https:\/\/hrtprikazuje.hrt.hr\/hrt-preporucuje\/normalan-zivot-138-12585982<\/a><\/p>\n\n\n\n

HRT \/ Hina \u2014 \u201cRijetke bolesti u RH \u2013 bez registra, novih terapija i podr\u0161ke\u201d <\/p>\n\n\n\n

Magazin HRT <\/strong><\/p>\n\n\n\n

https:\/\/magazin.hrt.hr\/zdravlje\/zagrli-za-rijetke–12583288<\/a><\/p>\n\n\n\n

Televizija Slavonije i Baranje <\/strong><\/p>\n\n\n\n

PREVENCIJOM DO ZDRAVLJA – Velja\u010da je mjesec podizanja svijesti o rijetkim bolestima <\/p>\n\n\n\n

https:\/\/youtu.be\/dJ9B9UWNWFQ?si=QhKxrUI1BjIrFQU9&sfnsn=wa<\/a><\/p>\n\n\n\n

REGIONALNI DNEVNIK, Zadar za rijetke <\/strong><\/p>\n\n\n\n

Prilog 26.velja\u010de, Dostupno na Regionalni dnevnik-01.mov <\/p>\n\n\n\n

DNEVNIK  NOVA TV<\/strong> https:\/\/dnevnik.hr\/video\/akcija-zagrli-za-rijetke—63264173<\/a> <\/p>\n\n\n\n

Radio Sljeme <\/strong><\/p>\n\n\n\n

https:\/\/radio.hrt.hr\/slusaonica\/sljemenska-ordinacija?epizoda=202602251330<\/a><\/p>\n\n\n\n

HRT Radio Osijek <\/strong>\u2013 U Osijeku obilje\u017een Me\u0111unarodni dan rijetkih bolesti (izvje\u0161taj kampanje) <\/p>\n\n\n\n

https:\/\/radio.hrt.hr\/radio-osijek\/vijesti\/u-osijeku-obiljezen-medunarodni-dan-rijetkih-bolesti-12594589<\/a><\/p>\n\n\n\n

HRT <\/strong>\u2013 \u201eMe\u0111unarodni dan rijetkih bolesti\u201c (Prvi program, razgovor i najava kampanje) <\/p>\n\n\n\n

https:\/\/radio.hrt.hr\/prvi-program\/zivot\/medunarodni-dan-rijetkih-bolesti-0-12593554<\/a><\/p>\n\n\n\n

https:\/\/radio.hrt.hr\/slusaonica\/dnevni-ritam<\/a><\/p>\n\n\n\n

Radio Koprivnica<\/strong> https:\/\/www.uzivoradio.com\/koprivnica.html<\/a> <\/p>\n\n\n\n

<\/div>\n\n\n\n

TV PRILOZI<\/h3>\n\n\n\n

Nova TV video prilog uz DNEVNIK.hr \u010dlanak, a u sklopu Dnevnik.hr objave dostupan je video prilog reporterke Sanje Vi\u0161tice vezan uz kampanju <\/p>\n\n\n\n

https:\/\/dnevnik.hr\/vijesti\/hrvatska\/vise-od-250-tisuca-hrvata-zivi-s-rijetkim-bolestima-obitelji-se-suocavaju-s-brojnim-izazovima—966481.html<\/a><\/p>\n\n\n\n

Prilozi u svim ve\u010dernjim informativnim emisijama <\/p>\n\n\n\n

<\/div>\n\n\n\n

Podr\u0161ka osoba iz javnog \u017eivota na dru\u0161tvenim mre\u017eama<\/strong> <\/p>\n\n\n\n

Influencer Handle Platforma Tip objave Datum Reach Engagement Link <\/p>\n\n\n\n

Nevena Rendeli   @nevenarendeli  Post  Instagram\/Facebook   22.velja\u010de 61,9 t pratitelja <\/p>\n\n\n\n

Marijana Batini\u0107 @marijanabatini\u0107 Instagram\/Facebook  22.velja\u010de post 285 t pratitelja <\/p>\n\n\n\n

Puls-ar.hr @pulsar_arh  Instagram story  26.velja\u010de 208 pratitelja <\/p>\n\n\n\n

Slivija&\u0110enifer @ nebionnikad  Instagram\/ tiktok  story 25.velja\u010de 2026. 21,6 t pratitelja <\/p>\n\n\n\n

Merla.hr @merla_home Instagram story  25.velja\u010de 10,2 t pratitelja <\/p>\n\n\n\n

Nana Nadrevi\u0107 @suddenly_nana Instagram story 27.velja\u010de 29,1 t pratitelja <\/p>\n\n\n\n

Antena Zagreb @antenazagreb Instagram story 28.velja\u010de 110 t pratitelja <\/p>\n\n\n\n

Plesni punktovi Zagreb @Plesni_punktovi_zagreb Instagram story 28.velja\u010de 1,908 pratitelja <\/p>\n\n\n\n

Grad Dubrovnik @grad.dubrovnik.official Instagram objava 28.velja\u010de 5,7 t pratitelja <\/p>\n\n\n\n

Urbani eventi  @urbani_eventi Instagram story 28.velja\u010de 4,8 t pratitelja <\/p>\n\n\n\n

Tina Biloglav @tina_biloglav Instagram story 26.velja\u010de 41,5 t pratitelja <\/p>\n\n\n\n

Iva Babi\u0107 @@ivra7 Instagram story 26.velja\u010de 3,8 t pratitelja <\/p>\n\n\n\n

Ida Prester @ida_prester Instagram story 27.velja\u010de 103 t pratitelja <\/p>\n\n\n\n

Dina \u0160tern Facebook objava 27.velja\u010de 866 pratitelja <\/p>","protected":false},"excerpt":{"rendered":"

Povodom obilje\u017eavanja Me\u0111unarodnog dana rijetkih bolesti 2026. godine, Hrvatski savez za rijetkebolesti organizirao je nacionalnu javnozdravstvenu kampanju pod nazivom \u201eZagrli za rijetke\u201c. 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