{"id":5719,"date":"2025-09-30T11:41:10","date_gmt":"2025-09-30T09:41:10","guid":{"rendered":"https:\/\/rijetke-bolesti.com\/?p=5719"},"modified":"2025-09-30T11:46:19","modified_gmt":"2025-09-30T09:46:19","slug":"5-vikend-sastanak-pedijatara-i-obitelji-djece-oboljele-od-hereditarnog-angioedema","status":"publish","type":"post","link":"https:\/\/rijetke-bolesti.com\/en\/5-vikend-sastanak-pedijatara-i-obitelji-djece-oboljele-od-hereditarnog-angioedema\/","title":{"rendered":"5th Weekend Meeting of Pediatricians and Families of Children with Hereditary Angioedema\nby Sara, September 30, 2025"},"content":{"rendered":"<p>On September 27 and 28, the 5th weekend meeting of pediatricians and families of children with hereditary angioedema (HAE) was held in Tuheljske Toplice. This gathering brought together experts and families with the aim of sharing knowledge, experiences, and mutual support.<\/p>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-full is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"600\" height=\"424\" src=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/HAE-hrvatska-logo-600x424-1.jpeg\" alt=\"\" class=\"wp-image-5721\" style=\"width:219px;height:auto\" srcset=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/HAE-hrvatska-logo-600x424-1.jpeg 600w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/HAE-hrvatska-logo-600x424-1-300x212.jpeg 300w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/HAE-hrvatska-logo-600x424-1-18x12.jpeg 18w\" sizes=\"auto, (max-width: 600px) 100vw, 600px\" \/><\/figure>\n<\/div>\n\n\n<p><strong>Lecture Program:<\/strong><br>Dr. Nevenka Cigrovski \u2013 Family Planning<br>Dr. Bojana Oluji\u0107 \u2013 The Importance of Short-Term Prophylaxis During Procedures<br>Dr. Barbara Kveni\u0107 \u2013 The Importance of Long-Term Prophylaxis in Children<br>Primarius Ljerka \u010culav \u2013 HAE and Abdominal Pain<br>Dr. Gabrijela Peri\u0107 Markovi\u0107 \u2013 The Impact of Physical Exercise on HAE<br>Dr. Ana Gra\u010danin Gudelj \u2013 Preparing the Child for Transition to Adult Care<\/p>\n\n\n\n<p>As in previous years, the meeting was an opportunity for learning, socializing, and strengthening the community that faces the daily challenges of living with HAE.<\/p>\n\n\n\n<p>Videos of the lectures can be watched at the following link: <a href=\"https:\/\/www.youtube.com\/watch?v=UzhpbdVytIk\">SASTANAK DJECE I RODITELJA S PEDIJATRIMA \u2013 TUHELJ 2025 <\/a><\/p>\n\n\n\n<figure class=\"wp-block-image size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"1024\" src=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0004-768x1024.jpg\" alt=\"\" class=\"wp-image-5724\" style=\"width:516px;height:auto\" srcset=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0004-768x1024.jpg 768w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0004-225x300.jpg 225w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0004-1152x1536.jpg 1152w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0004-9x12.jpg 9w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0004.jpg 1200w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"1024\" src=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0007-768x1024.jpg\" alt=\"\" class=\"wp-image-5725\" style=\"width:517px;height:auto\" srcset=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0007-768x1024.jpg 768w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0007-225x300.jpg 225w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0007-1152x1536.jpg 1152w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0007-9x12.jpg 9w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0007.jpg 1200w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"1024\" src=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0010-1-768x1024.jpg\" alt=\"\" class=\"wp-image-5727\" style=\"width:518px;height:auto\" srcset=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0010-1-768x1024.jpg 768w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0010-1-225x300.jpg 225w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0010-1-1152x1536.jpg 1152w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0010-1-9x12.jpg 9w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0010-1.jpg 1536w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"1024\" src=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0013-768x1024.jpg\" alt=\"\" class=\"wp-image-5728\" style=\"width:520px;height:auto\" srcset=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0013-768x1024.jpg 768w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0013-225x300.jpg 225w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0013-1152x1536.jpg 1152w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0013-9x12.jpg 9w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0013.jpg 1536w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"1024\" src=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0014-768x1024.jpg\" alt=\"\" class=\"wp-image-5729\" style=\"width:522px;height:auto\" srcset=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0014-768x1024.jpg 768w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0014-225x300.jpg 225w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0014-1152x1536.jpg 1152w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0014-9x12.jpg 9w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0014.jpg 1200w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"1024\" src=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0015-768x1024.jpg\" alt=\"\" class=\"wp-image-5730\" style=\"width:522px;height:auto\" srcset=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0015-768x1024.jpg 768w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0015-225x300.jpg 225w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0015-1152x1536.jpg 1152w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/IMG-20250930-WA0015-9x12.jpg 9w, 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This gathering brought together experts and families with the aim of sharing knowledge, experiences, and mutual support.<\/p>","protected":false},"author":3,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"content-type":"","footnotes":""},"categories":[1],"tags":[],"class_list":["post-5719","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.0 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>5. vikend sastanak pedijatara i obitelji djece oboljele od hereditarnog angioedema - Hrvatski savez za rijetke bolesti<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/rijetke-bolesti.com\/en\/5-vikend-sastanak-pedijatara-i-obitelji-djece-oboljele-od-hereditarnog-angioedema\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"5. vikend sastanak pedijatara i obitelji djece oboljele od hereditarnog angioedema - Hrvatski savez za rijetke bolesti\" \/>\n<meta property=\"og:description\" content=\"U Tuheljskim Toplicama, 27. i 28. rujna, odr\u017ean je **5. vikend sastanak pedijatara i obitelji djece oboljele od hereditarnog angioedema (HAE)**. Ovaj susret okupio je stru\u010dnjake i obitelji s ciljem razmjene znanja, iskustava i me\u0111usobne podr\u0161ke. Program predavanja:Dr. Nevenka Cigrovski \u2013 Planiranje obiteljiDr. Bojana Oluji\u0107\u00a0...\" \/>\n<meta property=\"og:url\" content=\"https:\/\/rijetke-bolesti.com\/en\/5-vikend-sastanak-pedijatara-i-obitelji-djece-oboljele-od-hereditarnog-angioedema\/\" \/>\n<meta property=\"og:site_name\" content=\"Hrvatski savez za rijetke bolesti\" \/>\n<meta property=\"article:published_time\" content=\"2025-09-30T09:41:10+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-09-30T09:46:19+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/09\/HAE-hrvatska-logo-600x424-1.jpeg\" \/>\n<meta name=\"author\" content=\"sara\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"sara\" \/>\n\t<meta name=\"twitter:label2\" content=\"Estimated reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/rijetke-bolesti.com\/5-vikend-sastanak-pedijatara-i-obitelji-djece-oboljele-od-hereditarnog-angioedema\/\",\"url\":\"https:\/\/rijetke-bolesti.com\/5-vikend-sastanak-pedijatara-i-obitelji-djece-oboljele-od-hereditarnog-angioedema\/\",\"name\":\"5. vikend sastanak pedijatara i obitelji djece oboljele od hereditarnog angioedema - 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