{"id":5484,"date":"2025-07-01T10:44:39","date_gmt":"2025-07-01T08:44:39","guid":{"rendered":"https:\/\/rijetke-bolesti.com\/?p=5484"},"modified":"2025-10-02T11:48:38","modified_gmt":"2025-10-02T09:48:38","slug":"mjesec-svjesnosti-o-spinalnoj-misicnoj-atrofiji-2","status":"publish","type":"post","link":"https:\/\/rijetke-bolesti.com\/en\/mjesec-svjesnosti-o-spinalnoj-misicnoj-atrofiji-2\/","title":{"rendered":"Spinal Muscular Atrophy Awareness Month"},"content":{"rendered":"<p>August is Spinal Muscular Atrophy (SMA) Awareness Month \u2013 a time to shine a light on this group of rare but serious genetic diseases that cause the progressive loss of skeletal muscle due to degeneration of motor neurons in the spinal cord and brainstem.\nSMA leads to progressive muscle weakness, with severity ranging from mild motor impairments to life-threatening forms.<\/p>\n\n\n\n<p>SMA doesn\u2019t only affect children \u2013 many adults live with it too, facing daily challenges. Thanks to scientific advances and new treatments, life with SMA looks different than it did just a few years ago, but early diagnosis and community support remain crucial.<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"825\" height=\"400\" src=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/07\/sma_002.jpeg\" alt=\"\" class=\"wp-image-5487\" srcset=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/07\/sma_002.jpeg 825w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/07\/sma_002-300x145.jpeg 300w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/07\/sma_002-768x372.jpeg 768w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/07\/sma_002-18x9.jpeg 18w\" sizes=\"auto, (max-width: 825px) 100vw, 825px\" \/><\/figure>\n\n\n\n<p>Rare neuromuscular diseases \u2013 including Spinal Muscular Atrophy (SMA), Friedreich\u2019s Ataxia, and Amyotrophic Lateral Sclerosis (ALS) \u2013 test the strength of those living with them every day.<\/p>\n\n\n\n<p>Because of low public awareness, these conditions often go unrecognized until they\u2019re advanced. But just one early piece of information can change everything.<\/p>\n\n\n\n<p>That\u2019s why we\u2019ve joined the \u201cEmpowered for New Victories\u201d campaign and are taking part in the Instagram challenge that celebrates strength, unity, and support! \ud83d\ude4c\ud83d\udcf8<\/p>\n\n\n\n<p>How can you join?<\/p>\n\n\n\n<ol class=\"wp-block-list\">\n<li>\ud83d\udc56Wear <strong>something blue<\/strong> \ud83d\udc57<\/li>\n\n\n\n<li>\ud83d\udcaa Flex <strong>biceps<\/strong> \u2013 a symbol of strength<\/li>\n\n\n\n<li>\ud83d\udcf7 Take a photo and post it on Instagram<\/li>\n\n\n\n<li>\ud83d\udcf2 Use hashtag: <strong>#EmpoweredForNewVictories<\/strong><\/li>\n\n\n\n<li>\ud83d\udc65 Tag at least <strong>three friends<\/strong> to join in!<\/li>\n<\/ol>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"752\" height=\"1024\" src=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/07\/4588ddf5-8284-4154-abe4-b59ee5d8ab9b-752x1024.png\" alt=\"\" class=\"wp-image-5490\" style=\"width:276px;height:auto\" srcset=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/07\/4588ddf5-8284-4154-abe4-b59ee5d8ab9b-752x1024.png 752w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/07\/4588ddf5-8284-4154-abe4-b59ee5d8ab9b-220x300.png 220w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/07\/4588ddf5-8284-4154-abe4-b59ee5d8ab9b-768x1046.png 768w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/07\/4588ddf5-8284-4154-abe4-b59ee5d8ab9b-9x12.png 9w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/07\/4588ddf5-8284-4154-abe4-b59ee5d8ab9b.png 1024w\" sizes=\"auto, (max-width: 752px) 100vw, 752px\" \/><\/figure>\n<\/div>\n\n\n<p>Together, we\u2019re raising awareness, encouraging early diagnosis, and showing that no one is alone in this fight.<\/p>\n\n\n\n<p>\ud83d\udc99 Your photo could help someone recognize symptoms in time.<\/p>\n\n\n\n<p>\ud83d\udc99 Your post could lead to early treatment.<\/p>\n\n\n\n<p>\ud83d\udc99 Your voice strengthens the entire community.<\/p>\n\n\n\n<div style=\"height:100px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p>This content was created with the financial support of the Ministry of Health.\nThe content of this document is the sole responsibility of the Croatian Alliance for Rare Diseases and under no circumstances can it be considered as reflecting the views of the Ministry of Health.<\/p>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-full is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"608\" height=\"237\" src=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/06\/minzd-1-1.jpg\" alt=\"\" class=\"wp-image-5442\" style=\"width:432px;height:auto\" srcset=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/06\/minzd-1-1.jpg 608w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/06\/minzd-1-1-300x117.jpg 300w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/06\/minzd-1-1-18x7.jpg 18w\" sizes=\"auto, (max-width: 608px) 100vw, 608px\" \/><\/figure>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>August is Spinal Muscular Atrophy (SMA) Awareness Month \u2013 a time to shine a light on this group of rare but serious genetic diseases that cause the progressive loss of skeletal muscle due to degeneration of motor neurons in the spinal cord and brainstem.\nSMA leads to progressive muscle weakness, ...<\/p>","protected":false},"author":3,"featured_media":5498,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"content-type":"","footnotes":""},"categories":[1],"tags":[],"class_list":["post-5484","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.0 - 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