{"id":5459,"date":"2025-06-21T08:56:00","date_gmt":"2025-06-21T06:56:00","guid":{"rendered":"https:\/\/rijetke-bolesti.com\/?p=5459"},"modified":"2025-06-26T11:39:06","modified_gmt":"2025-06-26T09:39:06","slug":"svjetski-dan-svjesnosti-o-bolestima-motornog-neurona","status":"publish","type":"post","link":"https:\/\/rijetke-bolesti.com\/en\/svjetski-dan-svjesnosti-o-bolestima-motornog-neurona\/","title":{"rendered":"World Motor Neurone Disease Awareness Day"},"content":{"rendered":"<p>World Motor Neurone Disease (MND) Awareness Day is observed every year on June 21.<\/p>\n\n\n\n<p>The aim of this day is to raise awareness about motor neurone diseases, such as Amyotrophic Lateral Sclerosis (ALS), Progressive Bulbar Palsy, Progressive Muscular Atrophy, Primary Lateral Sclerosis, and Progressive Pseudobulbar Palsy.<\/p>\n\n\n\n<p>It also serves to promote the importance of research and the development of therapies for these progressive neurological disorders that affect motor neurons and lead to a gradual loss of muscle function.<\/p>\n\n\n\n<p>Symbolically, June 21\u2014the longest day of the year in the northern hemisphere\u2014was chosen to represent the \u201clong day\u201d faced by people living with these severe conditions.<\/p>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"300\" height=\"168\" src=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/06\/download-4.jpeg\" alt=\"\" class=\"wp-image-5461\" srcset=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/06\/download-4.jpeg 300w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/06\/download-4-18x10.jpeg 18w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/figure>\n<\/div>\n\n\n<p>Motor neurone diseases (MNDs) are a group of rare, progressive neurological disorders that affect the nerve cells (neurons) responsible for controlling muscle movement. In MND, motor neurons in the brain and spinal cord gradually deteriorate, leading to muscle weakness, cramps, difficulty speaking, swallowing, and breathing. The disease gradually strips away mobility, although in most cases mental abilities remain intact. The cause is often unknown, and while there is currently no cure, treatments can help alleviate symptoms and slow disease progression.<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"853\" src=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/06\/global-day-generic-1024x853.jpg\" alt=\"\" class=\"wp-image-5465\" srcset=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/06\/global-day-generic-1024x853.jpg 1024w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/06\/global-day-generic-300x250.jpg 300w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/06\/global-day-generic-768x640.jpg 768w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/06\/global-day-generic-14x12.jpg 14w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/06\/global-day-generic.jpg 1200w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<p>The Neuron Association is a non-profit organization founded in 2014 in Zagreb with the mission of supporting individuals affected by ALS and other rare neuromuscular diseases. It provides psychosocial support, organizes educational events, supplies medical aids, and advocates for the rights of those affected.<\/p>\n\n\n\n<p>Neuron \u2013 Association of People with ALS and Other Rare Diseases<\/p>\n\n\n\n<p>Mail:\u00a0<a href=\"mailto:neuron.hrvatska@gmail.com\">neuron.hrvatska@gmail.com<\/a><\/p>\n\n\n\n<p>President&nbsp;<strong>Vesna Ma\u0107e\u0161i\u0107<\/strong><\/p>\n\n\n\n<p>Mail:&nbsp;<a href=\"mailto:vesna.neuron@gmail.com\">vesna.neuron@gmail.com<\/a><\/p>\n\n\n\n<p>mob&nbsp;+385915421068<\/p>\n\n\n\n<p>Web page: <a href=\"http:\/\/www.udruga-neuron.hr\">www.udruga-neuron.hr<\/a><\/p>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-full is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"80\" height=\"95\" src=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/06\/Neuron-Logo.png\" alt=\"\" class=\"wp-image-5463\" style=\"width:154px;height:auto\" srcset=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/06\/Neuron-Logo.png 80w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/06\/Neuron-Logo-10x12.png 10w\" sizes=\"auto, (max-width: 80px) 100vw, 80px\" \/><\/figure>\n<\/div>\n\n\n<p>This content was created with the financial support of the Ministry of Health.\nThe content of this document is the sole responsibility of the Croatian Alliance for Rare Diseases and under no circumstances can it be considered as reflecting the views of the Ministry of Health.<\/p>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"608\" height=\"237\" src=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/06\/minzd-1-1-1.jpg\" alt=\"\" class=\"wp-image-5464\" srcset=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/06\/minzd-1-1-1.jpg 608w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/06\/minzd-1-1-1-300x117.jpg 300w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2025\/06\/minzd-1-1-1-18x7.jpg 18w\" sizes=\"auto, (max-width: 608px) 100vw, 608px\" \/><\/figure>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>World Motor Neurone Disease (MND) Awareness Day is observed every year on June 21.\nThe aim of this day is to raise awareness about motor neurone diseases, such as Amyotrophic Lateral Sclerosis (ALS), Progressive Bulbar Palsy, Progressive Muscular Atrophy, Primary Lateral Sclerosis, and Progressive Pseudobulbar Palsy.<\/p>","protected":false},"author":3,"featured_media":5460,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"content-type":"","footnotes":""},"categories":[1],"tags":[],"class_list":["post-5459","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.0 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Svjetski dan svjesnosti o bolestima motornog neurona - Hrvatski savez za rijetke bolesti<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/rijetke-bolesti.com\/en\/svjetski-dan-svjesnosti-o-bolestima-motornog-neurona\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Svjetski dan svjesnosti o bolestima motornog neurona - Hrvatski savez za rijetke bolesti\" \/>\n<meta property=\"og:description\" content=\"Svjetski dan svjesnosti o bolestima motornog neurona (MND) obilje\u017eava se 21. lipnja svake godine. Cilj ovog dana je podizanje svijesti o motori\u010dkim neuronskim bolestima, kao \u0161to su amiotrofi\u010dna lateralna skleroza (ALS), progresivna bulbarna paraliza, progresivna mi\u0161i\u0107na atrofija, primarna lateralna skleroza i progresivna pseudobulbarna paraliza. 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