{"id":4110,"date":"2024-11-29T11:39:04","date_gmt":"2024-11-29T09:39:04","guid":{"rendered":"https:\/\/rijetke-bolesti.com\/?p=4110"},"modified":"2024-11-29T11:39:06","modified_gmt":"2024-11-29T09:39:06","slug":"savjetovaliste-za-rijetke-bolesti-sustav-sveobuhvatne-podrske-educentar","status":"publish","type":"post","link":"https:\/\/rijetke-bolesti.com\/en\/savjetovaliste-za-rijetke-bolesti-sustav-sveobuhvatne-podrske-educentar\/","title":{"rendered":"Counseling Center for Rare Diseases \u2013 System of Comprehensive Support \u2013 EduCenter"},"content":{"rendered":"

Na \u017ealost, \u010dinjenica je da se oboljeli od rijetkih bolesti i njihove obitelji, zbog nedostatka informacija susre\u0107u s nerazumijevanjem, \u010desto i diskriminacijom, u \u0161koli, na radnom mjestu, u zajednici. S ciljem podizanja svijesti o njihovim potrebama, upravo u svakodnevnom kontaktu s okolinom, kroz edukacije u\u010denika, studenata, razrednih i u\u010diteljskih vije\u0107a, roditelja, poslodavaca i drugih stru\u010dnjaka nastojimo utjecati na pove\u0107anje kvalitete \u017eivota i ve\u0107u uklju\u010denost oboljelih od rijetkih bolesti ali i osigurati im podr\u0161ku gdje im je najpotrebnija, u njihovoj najbli\u017eoj okolini. Osim brojnih edukacija na fakultetima, u srednjim i osnovnim \u0161kolama, vrti\u0107ima, Zavodima za socijalni rad, Zavodim za vje\u0161ta\u010denje, primjeri dobre prakse su i projekti ‘LITTLE BIG SIGNS OF DIAGNOSIS’ za studente medicine, praksa za studente u sklopu kolegija Socijalni rad s osobama s invaliditetom na Studijskom centru za socijalni rad, Pravnog fakulteta u Zagrebu te preddiplomskom studiju Edukacijske rehabilitacije.
Edukacije iz razli\u010ditih aspekata rijetkih bolesti (medicinskih, psiholo\u0161kih, sociolo\u0161kih) u suradnji s drugim stru\u010dnjacima, provode socijalne radnice, psihologinja, stru\u010dna suradnica mag.soc.rada i volonteri Studentske sekcije za rijetke bolesti, Medicinskog fakulteta u Zagrebu.<\/p>\n\n\n\n

The program is co-financed by the City of Zagreb, through the Office for Social Protection, Health, Veterans, and Persons with Disabilities.<\/p>\n\n\n

\n
\"\"<\/figure>\n<\/div>\n\n\n

<\/p>","protected":false},"excerpt":{"rendered":"

Unfortunately, the reality is that people affected by rare diseases and their families often face misunderstanding and even discrimination\u2014at school, in the workplace, and within the community\u2014due to a lack of information. To raise awareness about their needs, especially in everyday interactions with others, educational programs for students\u2026<\/p>","protected":false},"author":3,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"content-type":"","footnotes":""},"categories":[1],"tags":[],"class_list":["post-4110","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"yoast_head":"\nSavjetovali\u0161te za rijetke bolesti \u2013 sustav sveobuhvatne podr\u0161ke - Educentar - Hrvatski savez za rijetke bolesti<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/rijetke-bolesti.com\/en\/savjetovaliste-za-rijetke-bolesti-sustav-sveobuhvatne-podrske-educentar\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Savjetovali\u0161te za rijetke bolesti \u2013 sustav sveobuhvatne podr\u0161ke - Educentar - Hrvatski savez za rijetke bolesti\" \/>\n<meta property=\"og:description\" content=\"Na \u017ealost, \u010dinjenica je da se oboljeli od rijetkih bolesti i njihove obitelji, zbog nedostatka informacija susre\u0107u s nerazumijevanjem, \u010desto i diskriminacijom, u \u0161koli, na radnom mjestu, u zajednici. S ciljem podizanja svijesti o njihovim potrebama, upravo u svakodnevnom kontaktu s okolinom, kroz edukacije u\u010denika,...\" \/>\n<meta property=\"og:url\" content=\"https:\/\/rijetke-bolesti.com\/en\/savjetovaliste-za-rijetke-bolesti-sustav-sveobuhvatne-podrske-educentar\/\" \/>\n<meta property=\"og:site_name\" content=\"Hrvatski savez za rijetke bolesti\" \/>\n<meta property=\"article:published_time\" content=\"2024-11-29T09:39:04+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-11-29T09:39:06+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2024\/09\/grb-zg-og.png\" \/>\n<meta name=\"author\" content=\"sara\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"sara\" \/>\n\t<meta name=\"twitter:label2\" content=\"Estimated reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/rijetke-bolesti.com\/savjetovaliste-za-rijetke-bolesti-sustav-sveobuhvatne-podrske-educentar\/\",\"url\":\"https:\/\/rijetke-bolesti.com\/savjetovaliste-za-rijetke-bolesti-sustav-sveobuhvatne-podrske-educentar\/\",\"name\":\"Savjetovali\u0161te za rijetke bolesti \u2013 sustav sveobuhvatne podr\u0161ke - 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