{"id":4024,"date":"2024-09-24T11:23:59","date_gmt":"2024-09-24T09:23:59","guid":{"rendered":"https:\/\/rijetke-bolesti.com\/?p=4024"},"modified":"2024-09-24T11:30:50","modified_gmt":"2024-09-24T09:30:50","slug":"regionalni-sastanak-pacijenata-s-rijetkim-metabolickim-bolestima","status":"publish","type":"post","link":"https:\/\/rijetke-bolesti.com\/en\/regionalni-sastanak-pacijenata-s-rijetkim-metabolickim-bolestima\/","title":{"rendered":"REGIONAL MEETING OF PATIENTS WITH RARE METABOLIC DISEASES"},"content":{"rendered":"
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U poslijepodnevnim satima 19. rujna odr\u017ean je sastanak pacijenata s podru\u010dja balkanske regije, koji boluju od rijetkih metaboli\u010dkih bolesti ili su roditelji djece oboljele od rijetkih metaboli\u010dkih bolesti. <\/p>\n\n\n\n

Na sastanku je sudjelovala dr. sc. Tamara \u017digman, dr. med., specijalist pedijatar s u\u017eom specijalizacija iz medicinska genetike, koja je prisutnima odgovorila na individualna pitanja ali i predstavila novosti u podru\u010dju lije\u010denja te ih pozvala da se slobodno obrate Zavodu za medicinsku genetiku i bolesti metabolizma, ako imaju bilo kakvih dodatnih pitanja. <\/p>\n\n\n\n

Pacijenti su imali priliku razmijeniti iskustva te vidjeti koje su razlike u dijagnostici i tretmanu bolesti u Hrvatskoj u odnosu na druge zemlje te mogu o primjerima dobre prakse i novostima razgovarati sa svojim lije\u010dnicima.<\/p>\n\n\n\n

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On the afternoon of September 19, a meeting was held for patients from the Balkan region who suffer from rare metabolic diseases or are parents of children affected by rare metabolic diseases. The meeting was attended by Dr. Tamara \u017digman, MD, PhD, a pediatric specialist with a subspecialization in medical\u2026<\/p>","protected":false},"author":3,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"content-type":"","footnotes":""},"categories":[1],"tags":[],"class_list":["post-4024","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"yoast_head":"\nREGIONALNI SASTANAK PACIJENATA S RIJETKIM METABOLI\u010cKIM BOLESTIMA - Hrvatski savez za rijetke bolesti<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/rijetke-bolesti.com\/en\/regionalni-sastanak-pacijenata-s-rijetkim-metabolickim-bolestima\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"REGIONALNI SASTANAK PACIJENATA S RIJETKIM METABOLI\u010cKIM BOLESTIMA - Hrvatski savez za rijetke bolesti\" \/>\n<meta property=\"og:description\" content=\"U poslijepodnevnim satima 19. rujna odr\u017ean je sastanak pacijenata s podru\u010dja balkanske regije, koji boluju od rijetkih metaboli\u010dkih bolesti ili su roditelji djece oboljele od rijetkih metaboli\u010dkih bolesti. 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