{"id":4010,"date":"2024-09-24T11:16:24","date_gmt":"2024-09-24T09:16:24","guid":{"rendered":"https:\/\/rijetke-bolesti.com\/?p=4010"},"modified":"2024-09-24T11:31:35","modified_gmt":"2024-09-24T09:31:35","slug":"regionalni-trening-za-udruge","status":"publish","type":"post","link":"https:\/\/rijetke-bolesti.com\/en\/regionalni-trening-za-udruge\/","title":{"rendered":"REGIONAL TRAINING FOR ASSOCIATIONS"},"content":{"rendered":"
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19.rujna odr\u017ean je u hotelu Zonar u Zagrebu, jo\u0161 jedan Regionalni trening za udruge<\/em><\/strong> namijenjen voditeljima udruga s podru\u010dja balkanske regije, koje u svom radu pru\u017eaju podr\u0161ku oboljelima od rijetkih bolesti i njihovim obiteljima. Posljednji je odr\u017ean 2016.u Ka\u0161tel Kambelovcu. Na treningu je sudjelovalo trideset predstavnika udruga iz Hrvatske, Bosne i Hercegovine, Republike srpske i Srbije.<\/p>\n\n\n\n

Ciljevi treninga bili su:<\/p>\n\n\n\n

\u2022 Pru\u017eiti prakti\u010dna znanja i vje\u0161tine predstavnicima udruga kako bi bolje razumjeli procese upravljanja i zastupali interese pacijenata.<\/p>\n\n\n\n

\u2022 Osna\u017eiti voditelje udruga da bolje obavljaju svoje zadatke i postignu ciljeve u korist pacijenata i zajednice<\/p>\n\n\n\n

\u2022 Omogu\u0107iti umre\u017eavanje i razmjenu iskustava me\u0111u predstavnicima udruga, poti\u010du\u0107i suradnju i zajedni\u010dke inicijative.<\/p>\n\n\n\n

\u2022 Pru\u017eiti podr\u0161ku udrugama u njihovim aktivnostima, kao i savjete o komunikaciji s medijima, donatorima i drugim dionicima.<\/p>\n\n\n\n

Prije organizacije treninga proveli smo istra\u017eivanje potreba me\u0111u voditeljima udruga te smo na taj na\u010din utvrdili gdje su najve\u0107e potrebe. Sudionici su imali priliku aktivno sudjelovati na radionicama o vo\u0111enju, komunikaciji, fundraisingu te va\u017enosti sudjelovanja pacijenata u procesu procjene zdravstvenih tehnologija ( HTA- health tehnology assessment).<\/p>\n\n\n\n

<\/p>\n\n\n\n

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<\/p>","protected":false},"excerpt":{"rendered":"

On September 19, another Regional Training for Associations was held at the Zonar Hotel in Zagreb. This training was intended for association leaders from the Balkan region who provide support to individuals affected by rare diseases and their families. The previous training took place in 2016 in Ka\u0161tel Kambelovac. Thirty participants attended the session.<\/p>","protected":false},"author":3,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"content-type":"","footnotes":""},"categories":[1],"tags":[],"class_list":["post-4010","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"yoast_head":"\nREGIONALNI TRENING ZA UDRUGE - Hrvatski savez za rijetke bolesti<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/rijetke-bolesti.com\/en\/regionalni-trening-za-udruge\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"REGIONALNI TRENING ZA UDRUGE - Hrvatski savez za rijetke bolesti\" \/>\n<meta property=\"og:description\" content=\"19.rujna odr\u017ean je u hotelu Zonar u Zagrebu, jo\u0161 jedan Regionalni trening za udruge namijenjen voditeljima udruga s podru\u010dja balkanske regije, koje u svom radu pru\u017eaju podr\u0161ku oboljelima od rijetkih bolesti i njihovim obiteljima. 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