{"id":3985,"date":"2024-06-21T11:48:28","date_gmt":"2024-06-21T09:48:28","guid":{"rendered":"https:\/\/rijetke-bolesti.com\/?p=3985"},"modified":"2024-06-21T17:33:38","modified_gmt":"2024-06-21T15:33:38","slug":"medunarodni-dan-dravet-sindroma","status":"publish","type":"post","link":"https:\/\/rijetke-bolesti.com\/en\/medunarodni-dan-dravet-sindroma\/","title":{"rendered":"23. lipnja obilje\u017eavamo Me\u0111unarodni\u00a0 dan svjesnosti o Dravet sindromu"},"content":{"rendered":"

Dravetov sindrom, poznat i kao te\u0161ka mioklona epilepsija dje\u010dje dobi, \u0161to dolazi od engl. Severe myoclonic epilepsy of infancy (SMEI), rijetki je i te\u0161ki oblik epilepsije koji po\u010dinje u prvoj godini \u017eivota I na\u017ealost poga\u0111a najvulnerabilniju skupinu pacijenata, djecu. Karakteriziraju ga produljeni i \u010desti napadaji, \u010desto potaknuti groznicom ili visokim temperaturama. Ti napadaji mogu evoluirati u razli\u010dite vrste, uklju\u010duju\u0107i generalizirane toni\u010dko-kloni\u010dke napadaje, mioklonske napadaje i atipi\u010dne odsutne napadaje.<\/p>\n\n\n\n

Dravet sindrom se javlja kod djece ina\u010de urednog neurolo\u0161kog statusa te psihomotorni razvoj djeteta u po\u010detku te\u010de nesmetano, no u drugoj godini \u017eivota se kod djeteta primje\u0107uju odre\u0111ena razvojna odstupanja. Razvoj se usporava, a ponekad dolazi i do nazadovanja. Djeca s Dravet sindromom obi\u010dno do\u017eivljavaju zaostali razvoj govora i motori\u010dkih sposobnosti, hiperaktivnost i pote\u0161ko\u0107e sa spavanjem, kroni\u010dne infekcije, probleme s rastom i ravnote\u017eom te pote\u0161ko\u0107e u interakciji s drugima. U\u010dinci ovog poreme\u0107aja s vremenom se ne smanjuju, te imaju utjecaj na cijelu obitelj.<\/p>\n\n\n\n

Lije\u010denje Dravet sindroma usmjereno je na smanjenje broja i duljine napadaja. Napadaje koji dolaze s Dravet sindromom obi\u010dno je te\u0161ko kontrolirati, a osobe s ovim stanjem \u010desto trebaju uzimati vi\u0161e lijekova da bi terapija bila uspje\u0161na. Lije\u010denje Dravet sindroma uklju\u010duje multidisciplinarni pristup<\/strong>, uklju\u010duju\u0107i antiepilepti\u010dke lijekove za kontrolu napadaja, kao i terapije za rje\u0161avanje razvojnih i pona\u0161ajnih izazova. Va\u017eno je da osobe s Dravetovim sindromom primaju sveobuhvatnu skrb tima zdravstvenih stru\u010dnjaka, uklju\u010duju\u0107i neurologe, epileptologe i razvojne specijaliste.<\/p>\n\n\n\n

Zbog slo\u017eenosti i te\u017eine Dravetovog sindroma, kontinuirana istra\u017eivanja usmjerena su na razumijevanje temeljnih mehanizama stanja i razvoj ciljanih terapija radi pobolj\u0161anja ishoda<\/strong> za zahva\u0107ene osobe.<\/p>\n\n\n\n

Reference:<\/p>\n\n\n\n

    \n
  1. https:\/\/www.dravetfoundation.org\/what-is-dravet-syndrome\/<\/a><\/li>\n\n\n\n
  2. https:\/\/www.epilepsy.com\/learn\/types-epilepsy-syndromes\/dravet-syndrome<\/a><\/li>\n<\/ol>\n\n\n\n
    \"\"<\/figure>","protected":false},"excerpt":{"rendered":"

    Dravetov sindrom, poznat i kao te\u0161ka mioklona epilepsija dje\u010dje dobi, \u0161to dolazi od engl. Severe myoclonic epilepsy of infancy (SMEI), rijetki je i te\u0161ki oblik epilepsije koji po\u010dinje u prvoj godini \u017eivota I na\u017ealost poga\u0111a najvulnerabilniju skupinu pacijenata, djecu. Karakteriziraju ga produljeni i \u010desti napadaji,…<\/p>","protected":false},"author":3,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"content-type":"","footnotes":""},"categories":[1],"tags":[],"class_list":["post-3985","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"yoast_head":"\n23. lipnja obilje\u017eavamo Me\u0111unarodni\u00a0 dan svjesnosti o Dravet sindromu - Hrvatski savez za rijetke bolesti<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/rijetke-bolesti.com\/en\/medunarodni-dan-dravet-sindroma\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"23. lipnja obilje\u017eavamo Me\u0111unarodni\u00a0 dan svjesnosti o Dravet sindromu - Hrvatski savez za rijetke bolesti\" \/>\n<meta property=\"og:description\" content=\"Dravetov sindrom, poznat i kao te\u0161ka mioklona epilepsija dje\u010dje dobi, \u0161to dolazi od engl. Severe myoclonic epilepsy of infancy (SMEI), rijetki je i te\u0161ki oblik epilepsije koji po\u010dinje u prvoj godini \u017eivota I na\u017ealost poga\u0111a najvulnerabilniju skupinu pacijenata, djecu. 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