{"id":3431,"date":"2023-05-08T15:03:23","date_gmt":"2023-05-08T13:03:23","guid":{"rendered":"https:\/\/rijetke-bolesti.com\/?p=3431"},"modified":"2023-05-08T15:10:13","modified_gmt":"2023-05-08T13:10:13","slug":"promocija-knjige-teski-dani-psp-moj-put","status":"publish","type":"post","link":"https:\/\/rijetke-bolesti.com\/en\/promocija-knjige-teski-dani-psp-moj-put\/","title":{"rendered":"Promocija knjige &#8216;TE\u0160KI DANI PSP- Moj put&#8221;"},"content":{"rendered":"<h3 class=\"wp-block-heading\">dr.sc. Branko Lugovi\u0107 22. svibnja predstaviti \u0107e knjigu o svom putu do pronalaska dijagnoze PSP- progresivne supranuklearne paralize<\/h3>\n\n\n\n<p>Promocija \u0107e se odr\u017eati 22. svibnja u 18 sati u predvorju Nacionalne i sveu\u010dili\u0161ne knji\u017enice u Zagrebu, Hrvatske bratske zajednice 4, 10000 Zagreb. Svi zainteresirani slobodni su do\u0107i.<\/p>\n\n\n\n<p>U daljnjem tekstu donosimo sa\u017eetak: <\/p>\n\n\n\n<p><em>Ovo je knjiga bolesnika s klini\u010dki potvr\u0111enom dijagnozom progresivne supranuklearne paralize (PSP) koja je namijenjena bolesnicima s istom dijagnozom, ali i ostalim bolesnicima koji imaju neurodegenerativnu bolest (Alzheimerova bolest, Parkinsonova bolest, ALS, Huntingtonova bolest).. Ovo je knjiga bolesnika koji ima osnovna znanja iz medicine kao \u0161to su farmakologija, fiziologija, patolo\u0161ka fiziologija i patolo\u0161ka anatomija te na osnovu tih znanja opisuje i obja\u0161njava vlastite znakove bolesti i na\u010din na koji ih nastoji kontrolirati. Ovo nije knjiga znanstvenika koji pi\u0161e o progresivnoj supranuklearnoj paralizi citiraju\u0107i literaturne podatke za svoje kolege znanstvenike, za doktore neurologe ili za studente medicine. Pisanjem ove knjige, \u017eelja mi je da na jednom mjestu opi\u0161em svoje spoznaje o progresivnoj supranuklearnoj paralizi. Informacije su namijenjene onima kojima je kvaliteta \u017eivota smanjena zbog degenarativnih promjena u mozgu koje se javljaju kod ove bolesti. Tako\u0111er, informacije su namijenjene i onima koji \u017eive s ovim bolesnicima ili ih imaju u svojoj blizini. Namjera mi je da \u010ditatelji ove knjige saznaju kako se jedan obi\u010dan \u017eivot, \u017eivot sretne i uspje\u0161ne obitelji mo\u017ee promijeniti u kratkom vremenu. Namjera mi je, tako\u0111er, da bolesnicima pomogne da se ne pomire s ovom te\u0161kom bole\u0161\u0107u i s vlastitom prolazno\u0161\u0107u, nego da se bore do posljednjeg dana. U ovoj knjizi iznosim iskreno svoja osobna saznanja i vlastita iskustva u borbi protiv ove opake bolesti. Na ovaj na\u010din svojim iskustvom \u017eelim pomo\u0107i drugima koji imaju istu dijagnozu o mogu\u0107em tretmanu i, koliko je to mogu\u0107e, u odr\u017eavanju \u0161to bolje kvalitete \u017eivota.<\/em><\/p>\n\n\n\n<p><em><br>Sa PSP-em borim se \u0161est godina, od jeseni 2016. godine pod nadzorom lije\u010dnika u Hrvatskoj i Belgiji. Moje iskustvo pokazuje da se s bole\u0161\u0107u mo\u017ee boriti, napredovanje simptoma bolesti usporiti te osigurati prihvatljivu kvalitetu \u017eivota, \u017eivota dostojnog za \u010dovjeka koji je u dobi od preko sedamdeset godina. Moja borba sastoji se od \u010detiri elementa, a to su: 1) spremnost da uzimam lijekove koji se jo\u0161 ispituju za PSP; 2) redovite vje\u017ebe koje radim svaki dan najmanje 1 sat po rasporedu za cijeli tjedan; 3) elektrostimulacije mozga (tDCS); 4) spavanje s respiratorom jer mi je dijagnosticirana apneja (CPAP). U toj borbi najvi\u0161e mi je pomogla moja upornost uz osnovno medicinsko obrazovanje (srednja medicinska \u0161kola, fakultet veterinarske medicine i doktorat medicinskih znanosti).<br>Iznose\u0107i osobna iskustva u ovoj knjizi, kao i svoja razmi\u0161ljanja, nije mi namjera davati savjete niti medicinske upute o lije\u010denju PSP bolesnika. Oboljeli se treba obratiti svom lije\u010dniku koji \u0107e odrediti pretrage i propisati odgovaraju\u0107e terapije.<\/em><\/p>","protected":false},"excerpt":{"rendered":"<p>dr.sc. Branko Lugovi\u0107 22. svibnja predstaviti \u0107e knjigu o svom putu do pronalaska dijagnoze PSP- progresivne supranuklearne paralize Promocija \u0107e se odr\u017eati 22. svibnja u 18 sati u predvorju Nacionalne i sveu\u010dili\u0161ne knji\u017enice u Zagrebu, Hrvatske bratske zajednice 4, 10000 Zagreb. Svi zainteresirani slobodni su&#8230;<\/p>","protected":false},"author":3,"featured_media":3432,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"content-type":"","footnotes":""},"categories":[1],"tags":[],"class_list":["post-3431","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.0 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Promocija knjige &#039;TE\u0160KI DANI PSP- Moj put&#039;&#039; - Hrvatski savez za rijetke bolesti<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/rijetke-bolesti.com\/en\/promocija-knjige-teski-dani-psp-moj-put\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Promocija knjige &#039;TE\u0160KI DANI PSP- Moj put&#039;&#039; - Hrvatski savez za rijetke bolesti\" \/>\n<meta property=\"og:description\" content=\"dr.sc. Branko Lugovi\u0107 22. svibnja predstaviti \u0107e knjigu o svom putu do pronalaska dijagnoze PSP- progresivne supranuklearne paralize Promocija \u0107e se odr\u017eati 22. svibnja u 18 sati u predvorju Nacionalne i sveu\u010dili\u0161ne knji\u017enice u Zagrebu, Hrvatske bratske zajednice 4, 10000 Zagreb. 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