{"id":3372,"date":"2023-04-14T12:57:25","date_gmt":"2023-04-14T10:57:25","guid":{"rendered":"https:\/\/rijetke-bolesti.com\/?p=3372"},"modified":"2024-04-29T20:35:09","modified_gmt":"2024-04-29T18:35:09","slug":"podrska-zenama-s-rijetkim-bolestima-i-majkama-djece-s-rijetkim-bolestima","status":"publish","type":"post","link":"https:\/\/rijetke-bolesti.com\/en\/podrska-zenama-s-rijetkim-bolestima-i-majkama-djece-s-rijetkim-bolestima\/","title":{"rendered":"Podr\u0161ka \u017eenama s rijetkim bolestima i majkama djece s rijetkim bolestima"},"content":{"rendered":"<figure class=\"wp-block-gallery has-nested-images columns-default is-cropped wp-block-gallery-1 is-layout-flex wp-block-gallery-is-layout-flex\">\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"577\" data-id=\"3829\" src=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2024\/04\/WEBCOVER-ZENSKI-STAV-ZA-SUSTAV-2-1024x577.png\" alt=\"\" class=\"wp-image-3829\" srcset=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2024\/04\/WEBCOVER-ZENSKI-STAV-ZA-SUSTAV-2-1024x577.png 1024w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2024\/04\/WEBCOVER-ZENSKI-STAV-ZA-SUSTAV-2-300x169.png 300w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2024\/04\/WEBCOVER-ZENSKI-STAV-ZA-SUSTAV-2-768x433.png 768w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2024\/04\/WEBCOVER-ZENSKI-STAV-ZA-SUSTAV-2-1536x865.png 1536w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2024\/04\/WEBCOVER-ZENSKI-STAV-ZA-SUSTAV-2-1200x675.png 1200w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2024\/04\/WEBCOVER-ZENSKI-STAV-ZA-SUSTAV-2.png 1640w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n<\/figure>\n\n\n\n<h3 class=\"wp-block-heading\">U sklopu projekta \u201e\u017dENSKI STAV ZA SUSTAV! Sveobuhvatna podr\u0161ka i osna\u017eivanje \u017eena s izazovima rijetkih bolesti\u201c, Hrvatski savez za rijetke bolesti omogu\u0107io je pru\u017eanje psihosocijalne podr\u0161ke \u017eenama s rijetkim bolestima i majkama djece s rijetkim bolestima te pomo\u0107 u koordinaciji njihovih potreba.<\/h3>\n\n\n\n<p>Podr\u0161ku pru\u017eaju volonteri\/volonterke \u2013 studenti\/ce pomaga\u010dkih zanimanja, koji su prethodno pro\u0161li edukaciju pod stru\u010dnim vodstvom psihologinje Saveza. &nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;<br>Uz Hrvatski savez za rijetke bolesti, istu metodu u podru\u010dju rada s majkama djece s te\u0161ko\u0107ama u razvoju, primijenila je partnerska organizacija Inkluzivna ku\u0107a \u201eZvono\u201c iz Beli\u0161\u0107a.<\/p>\n\n\n\n<p>Tijekom prvih \u0161est mjeseci provedbe projekta, pru\u017eena je psihosocijalna podr\u0161ka 55 \u017eena iz navedenih skupina, a u pru\u017eanju podr\u0161ke sudjelovalo je ukupno 36 volonterki\/volontera. Dodatno, kroz njihovu komunikaciju s projektnim timom (socijalne radnice, psihologinja, voditeljica projekta) pojedine \u017eene savjetovane su o pravima i mogu\u0107nostima unutar sustava socijalne skrbi, upu\u0107ene na ustanove\/institucije gdje mogu rije\u0161iti specifi\u010dne probleme na koje nailaze, pru\u017eena im je podr\u0161ka (pisanje \u017ealbi) kada su postojale te\u0161ko\u0107e u ostvarivanju prava, a nekim majkama dodatna podr\u0161ka pru\u017eena je uklju\u010divanjem djece u besplatnu radnu terapiju. &nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;<br><br><strong>Projekt \u201e\u017dENSKI STAV ZA SUSTAV! Sveobuhvatna podr\u0161ka i osna\u017eivanje \u017eena s izazovima rijetkih bolesti\u201c je podr\u017ean kroz Fond za aktivno gra\u0111anstvo, sredstvima Islanda, Lihten\u0161tajna i Norve\u0161ke u okviru EGP grantova.<\/strong>&nbsp;<br><br><strong>Project duration:<\/strong>&nbsp;15 months (September 1, 2022 \u2013 November 30, 2023)<\/p>\n\n\n\n<p><strong>Project value:<\/strong>&nbsp;86.044,30 EUR<\/p>\n\n\n\n<p><strong>Contact person:<\/strong>&nbsp;Suzana Saki\u0107, Project Manager&nbsp;<a href=\"mailto:projekti.hsrb@gmail.com\">projekti.hsrb@gmail.com<\/a><\/p>\n\n\n\n<p><strong>Project Partners:<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>CESI \u2013<\/strong>&nbsp;Center for Education, Counselling and Research<a href=\"http:\/\/www.cesi.hr\/\">http:\/\/www.cesi.hr\/<\/a>)<\/li>\n\n\n\n<li><strong>Inclusive House Zvono<\/strong>&nbsp;(<a href=\"https:\/\/udrugazvono.hr\/\">https:\/\/udrugazvono.hr\/<\/a>)<\/li>\n\n\n\n<li><strong>NORBCG \u2013<\/strong>&nbsp;Nacionalna organizacija za rijetke bolesti Crne Gore (<a href=\"https:\/\/rijetkebolesti.com\/\">https:\/\/rijetkebolesti.com\/<\/a>)<\/li>\n\n\n\n<li><strong>FRAMBU<\/strong>&nbsp;(Norve\u0161ka) (<a href=\"https:\/\/frambu.no\/\">https:\/\/frambu.no\/<\/a>)<\/li>\n<\/ul>","protected":false},"excerpt":{"rendered":"<p>U sklopu projekta \u201e\u017dENSKI STAV ZA SUSTAV! Sveobuhvatna podr\u0161ka i osna\u017eivanje \u017eena s izazovima rijetkih bolesti\u201c, Hrvatski savez za rijetke bolesti omogu\u0107io je pru\u017eanje psihosocijalne podr\u0161ke \u017eenama s rijetkim bolestima i majkama djece s rijetkim bolestima te pomo\u0107 u koordinaciji njihovih potreba. Podr\u0161ku pru\u017eaju volonteri\/volonterke&#8230;<\/p>","protected":false},"author":3,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"content-type":"","footnotes":""},"categories":[1,24],"tags":[],"class_list":["post-3372","post","type-post","status-publish","format-standard","hentry","category-uncategorized","category-projekti"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.0 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Podr\u0161ka \u017eenama s rijetkim bolestima i majkama djece s rijetkim bolestima - Hrvatski savez za rijetke bolesti<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/rijetke-bolesti.com\/en\/podrska-zenama-s-rijetkim-bolestima-i-majkama-djece-s-rijetkim-bolestima\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Podr\u0161ka \u017eenama s rijetkim bolestima i majkama djece s rijetkim bolestima - Hrvatski savez za rijetke bolesti\" \/>\n<meta property=\"og:description\" content=\"U sklopu projekta \u201e\u017dENSKI STAV ZA SUSTAV! Sveobuhvatna podr\u0161ka i osna\u017eivanje \u017eena s izazovima rijetkih bolesti\u201c, Hrvatski savez za rijetke bolesti omogu\u0107io je pru\u017eanje psihosocijalne podr\u0161ke \u017eenama s rijetkim bolestima i majkama djece s rijetkim bolestima te pomo\u0107 u koordinaciji njihovih potreba. 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