{"id":3192,"date":"2023-01-27T14:52:39","date_gmt":"2023-01-27T12:52:39","guid":{"rendered":"https:\/\/rijetke-bolesti.com\/?p=3192"},"modified":"2025-04-24T12:49:42","modified_gmt":"2025-04-24T10:49:42","slug":"europski-summit-o-rijetkim-bolestima-2023","status":"publish","type":"post","link":"https:\/\/rijetke-bolesti.com\/en\/europski-summit-o-rijetkim-bolestima-2023\/","title":{"rendered":"European Summit on Rare Diseases 2023"},"content":{"rendered":"<h3 class=\"wp-block-heading\">Ahead of Rare Disease Day, a major European Summit on Rare Diseases will be held in Madrid.<\/h3>\n\n\n\n<figure class=\"wp-block-image size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"683\" src=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2023\/01\/EUROPE-RDS-PLACA-3-1024x683.jpg\" alt=\"\" class=\"wp-image-3193\" style=\"width:841px;height:561px\" srcset=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2023\/01\/EUROPE-RDS-PLACA-3-1024x683.jpg 1024w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2023\/01\/EUROPE-RDS-PLACA-3-300x200.jpg 300w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2023\/01\/EUROPE-RDS-PLACA-3-768x512.jpg 768w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2023\/01\/EUROPE-RDS-PLACA-3.jpg 1200w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<div style=\"height:100px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p>The aim of the meeting is to discuss key trends and issues related to the diagnosis and treatment of rare diseases, as well as the challenges of timely and equal access to medications for rare diseases and European initiatives for access, research, and innovation programs. All with the goal of improving the lives of patients with rare diseases.<\/p>\n\n\n\n<div style=\"height:100px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>The discussion topics at the summit include:<\/strong><\/h3>\n\n\n\n<p>\u25cf National plans, policies, and government initiatives for rare diseases<\/p>\n\n\n\n<p>\u25cf Innovations and access to medications for rare diseases: challenges and opportunities<\/p>\n\n\n\n<p>\u25cf The role of artificial intelligence in overcoming challenges of rare diseases<\/p>\n\n\n\n<p>\u25cf Advances in diagnosis and treatment of rare diseases: Gene therapies<\/p>\n\n\n\n<p>\u25cf Viral vector and mRNA technologies: implementation and future development for rare diseases<\/p>\n\n\n\n<p>\u25cf The patient's voice as a driver of access to and approval of medications<\/p>\n\n\n\n<p>\u25cf Specific registries and diagnostics<\/p>\n\n\n\n<div style=\"height:100px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<figure class=\"wp-block-gallery has-nested-images columns-2 is-cropped has-white-background-color has-background wp-block-gallery-1 is-layout-flex wp-block-gallery-is-layout-flex\">\n<figure class=\"wp-block-image size-medium\"><img loading=\"lazy\" decoding=\"async\" width=\"300\" height=\"251\" data-id=\"3197\" src=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2023\/01\/ERDS-Topics-1-300x251.jpg\" alt=\"\" class=\"wp-image-3197\" srcset=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2023\/01\/ERDS-Topics-1-300x251.jpg 300w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2023\/01\/ERDS-Topics-1-768x644.jpg 768w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2023\/01\/ERDS-Topics-1.jpg 940w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-medium\"><img loading=\"lazy\" decoding=\"async\" width=\"300\" height=\"251\" data-id=\"3198\" src=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2023\/01\/EUROPE-RDS-SPEAKERS-1-1-300x251.jpg\" alt=\"\" class=\"wp-image-3198\" srcset=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2023\/01\/EUROPE-RDS-SPEAKERS-1-1-300x251.jpg 300w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2023\/01\/EUROPE-RDS-SPEAKERS-1-1-768x644.jpg 768w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2023\/01\/EUROPE-RDS-SPEAKERS-1-1.jpg 940w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/figure>\n<\/figure>\n\n\n\n<div style=\"height:100px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p><strong>All interested parties can register through this <a href=\"https:\/\/bamberghealth.com\/event\/europe-rare-disease-summit-2023?ref=ERDS2023-media-invites&amp;lang=hr\">link<\/a>.<\/strong><\/p>","protected":false},"excerpt":{"rendered":"<p>Ahead of Rare Disease Day, a major European Summit on Rare Diseases will be held in Madrid. The aim of the meeting is to discuss key trends and issues related to the diagnosis and treatment of rare diseases, as well as the challenges of timely and equal access to medications for rare diseases and European initiatives for access, research, and innovation programs.<\/p>","protected":false},"author":3,"featured_media":3193,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"content-type":"","footnotes":""},"categories":[16],"tags":[],"class_list":["post-3192","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-medunarodni-dan-rijetkih-bolesti"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.0 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Europski samit o rijetkim bolestima 2023 - Hrvatski savez za rijetke bolesti<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/rijetke-bolesti.com\/en\/europski-summit-o-rijetkim-bolestima-2023\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Europski samit o rijetkim bolestima 2023 - Hrvatski savez za rijetke bolesti\" \/>\n<meta property=\"og:description\" content=\"Uo\u010di me\u0111unarodnog Dana rijetkih bolesti odr\u017eat \u0107e se veliki Europski samit o rijetkim bolestima u Madridu. Cilj susreta je rasprava o klju\u010dnim trendovima i temama vezanim uz dijagnostiku i lije\u010denja rijetkih bolesti, kao i izazove pravodobnog i ravnopravnog pristupa lijekovima za rijetke bolesti i europskim...\" \/>\n<meta property=\"og:url\" content=\"https:\/\/rijetke-bolesti.com\/en\/europski-summit-o-rijetkim-bolestima-2023\/\" \/>\n<meta property=\"og:site_name\" content=\"Hrvatski savez za rijetke bolesti\" \/>\n<meta property=\"article:published_time\" content=\"2023-01-27T12:52:39+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-04-24T10:49:42+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2023\/01\/EUROPE-RDS-PLACA-3.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"800\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"sara\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"sara\" \/>\n\t<meta name=\"twitter:label2\" content=\"Estimated reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/rijetke-bolesti.com\/europski-summit-o-rijetkim-bolestima-2023\/\",\"url\":\"https:\/\/rijetke-bolesti.com\/europski-summit-o-rijetkim-bolestima-2023\/\",\"name\":\"Europski samit o rijetkim bolestima 2023 - 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