{"id":3122,"date":"2022-12-16T16:39:52","date_gmt":"2022-12-16T14:39:52","guid":{"rendered":"https:\/\/rijetke-bolesti.com\/?p=3122"},"modified":"2022-12-16T16:39:53","modified_gmt":"2022-12-16T14:39:53","slug":"novartis-patient-association-academy-u-trakoscanu","status":"publish","type":"post","link":"https:\/\/rijetke-bolesti.com\/en\/novartis-patient-association-academy-u-trakoscanu\/","title":{"rendered":"Novartis Patient Association Academy u Trako\u0161\u0107anu \u00a0\u00a0<\/strong>"},"content":{"rendered":"

Projekt \u201ePostanimo \u010de\u0161\u0107i!\u201c<\/strong><\/h2>\n\n\n\n

Novartis Hrvatska je od 9.12. do 11.12.2022. u Trako\u0161\u0107anu odr\u017eao jo\u0161 jedan susret u sklopu Patient Association Academy, na kojem su sudjelovale udruge koje se bave pravima pacijenata iz Hrvatske, Srbije, Crne Gore, BiH I Makedonije. \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0
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Iva Omr\u010den i Suzana Saki\u0107<\/figcaption><\/figure>\n<\/div>\n\n\n

Susret je zapo\u010deo u petak, 9.12. <\/strong>predavanjima o Tik-Toku i njegovim potencijalima za neprofitne organizacije te o smjerovima u kojima se dana\u0161nje dru\u0161tvo kre\u0107e i ulogom civilnog dru\u0161tva u tome. Subota, 10.12<\/strong>., bila je rezervirana za prezentacije projekata na kojima su kroz prethodnih nekoliko mjeseci radili predstavnici okupljenih udruga, uz pomo\u0107 mentorica – stru\u010dnjakinja za podru\u010dje komunikacija, brendiranja i marketinga, strate\u0161kog razvoja, upravljanja i vo\u0111enja \u2013 koje su im dodijeljene. Ukupno 24 udruge iz regije predstavile su svoje projekte, a na kraju je stru\u010dna komisija (koju su \u010dinile sve mentorice te predstavnice Novartisa) odabrala 6 projekata koji su nagra\u0111eni daljnjom edukacijom Zaklade \u201e\u017duta to\u010dka\u201c<\/strong>. Ova edukacija \u0107e omogu\u0107iti daljnji razvoj predstavljenih projekata te sjecanje znanja iz podru\u010dja fundraisinga.<\/em><\/p>\n\n\n

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Suzana Saki\u0107 (HSRB) , Iva Omr\u010den (NORBS) i Anamarija Hrvoi\u0107 \u0110uri\u0107\u00a0(Manjgura)<\/figcaption><\/figure>\n<\/div>\n\n\n

Suzana Saki\u0107, voditeljica projekata<\/strong> u Hrvatskom savezu za rijetke bolesti, s kolegicom Ivom Omr\u010den<\/strong> iz Nacionalne organizacije za retke bolesti Srbije – NORBS<\/a> predstavila je regionalni partnerski projekt \u201ePostanimo \u010de\u0161\u0107i!\u201c <\/strong>(u partnerstvo je uklju\u010den i Savez za rijetke bolesti Republike Srpske). Upravo je ovaj projekt me\u0111u nagra\u0111enima i odabranima za daljnji razvoj, mentorstvo i podr\u0161ku. \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0

\u00a0Posljednjeg dana susreta odr\u017eana je radionica usmjerena na osobno osna\u017eivanje sudionika i postavljanje ciljeva za 2023. godinu.<\/p>\n\n\n

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\"\"<\/figure>\n<\/div>","protected":false},"excerpt":{"rendered":"

Projekt \u201ePostanimo \u010de\u0161\u0107i!\u201c Novartis Hrvatska je od 9.12. do 11.12.2022. u Trako\u0161\u0107anu odr\u017eao jo\u0161 jedan susret u sklopu Patient Association Academy, na kojem su sudjelovale udruge koje se bave pravima pacijenata iz Hrvatske, Srbije, Crne Gore, BiH I Makedonije. \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 Iva Omr\u010den i Suzana Saki\u0107…<\/p>","protected":false},"author":3,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"content-type":"","footnotes":""},"categories":[1],"tags":[],"class_list":["post-3122","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"yoast_head":"\nNovartis Patient Association Academy u Trako\u0161\u0107anu \u00a0\u00a0 - Hrvatski savez za rijetke bolesti<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/rijetke-bolesti.com\/en\/novartis-patient-association-academy-u-trakoscanu\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Novartis Patient Association Academy u Trako\u0161\u0107anu \u00a0\u00a0 - 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