{"id":2995,"date":"2022-09-08T15:24:00","date_gmt":"2022-09-08T13:24:00","guid":{"rendered":"https:\/\/rijetke-bolesti.com\/?p=2995"},"modified":"2022-09-29T15:34:33","modified_gmt":"2022-09-29T13:34:33","slug":"medunarodni-sastanak-pacijenata-i-predstavnika-udruga","status":"publish","type":"post","link":"https:\/\/rijetke-bolesti.com\/en\/medunarodni-sastanak-pacijenata-i-predstavnika-udruga\/","title":{"rendered":"Me\u0111unarodni sastanak pacijenata i predstavnika udruga"},"content":{"rendered":"<p>Dopredsjednica <em>Sara Bajlo<\/em> i psihologinja Saveza <em>Sanja Di\u00f3sy<\/em> sudjelovale su na dvodnevnom me\u0111unarodnom sastanku pacijenata i predstavnika udruga za <strong>spinalnu mi\u0161i\u0107nu atrofiju<\/strong> s ciljem osna\u017eivanja SMA zajednice.<\/p>\n<p>Predstavnici udruga podijelili su svoje primjere dobre prakse. Odr\u017eana je i vo\u0111ena rasprava na temu osiguravanja novoro\u0111ena\u010dkog probira na <strong>SMA<\/strong> u zemljama koje ga jo\u0161 nisu implementirale. <span class=\"fxk3tzhb b2rh1bv3 gh55jysx m8h3af8h ewco64xe kjdc1dyq ms56khn7 bq6c9xl4 eohcrkr5 akh3l2rg\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/static.xx.fbcdn.net\/images\/emoji.php\/v9\/t87\/1\/16\/1f340.png\" alt=\"\ud83c\udf40\" width=\"16\" height=\"16\"><\/span><\/p>\n<p>Me\u0111unarodni sastanak odr\u017eao se u Ljubljani 21.- 22.09.2022.&nbsp;<\/p>\n\n\n<div style=\"height:115px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<figure class=\"wp-block-gallery columns-3 is-cropped wp-block-gallery-1 is-layout-flex wp-block-gallery-is-layout-flex\"><ul class=\"blocks-gallery-grid\"><li class=\"blocks-gallery-item\"><figure><img loading=\"lazy\" decoding=\"async\" width=\"300\" height=\"225\" src=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/09\/309335761_5244192622357675_736630025055857152_n-300x225.jpg\" alt=\"\" data-id=\"2996\" data-full-url=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/09\/309335761_5244192622357675_736630025055857152_n.jpg\" data-link=\"https:\/\/rijetke-bolesti.com\/?attachment_id=2996\" class=\"wp-image-2996\" srcset=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/09\/309335761_5244192622357675_736630025055857152_n-300x225.jpg 300w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/09\/309335761_5244192622357675_736630025055857152_n-1024x768.jpg 1024w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/09\/309335761_5244192622357675_736630025055857152_n-768x576.jpg 768w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/09\/309335761_5244192622357675_736630025055857152_n-1536x1152.jpg 1536w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/09\/309335761_5244192622357675_736630025055857152_n.jpg 2048w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/figure><\/li><li class=\"blocks-gallery-item\"><figure><img loading=\"lazy\" decoding=\"async\" width=\"225\" height=\"300\" src=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/09\/308028673_5244192442357693_7070009923381545673_n-225x300.jpg\" alt=\"\" data-id=\"2999\" data-full-url=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/09\/308028673_5244192442357693_7070009923381545673_n.jpg\" data-link=\"https:\/\/rijetke-bolesti.com\/?attachment_id=2999\" class=\"wp-image-2999\" srcset=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/09\/308028673_5244192442357693_7070009923381545673_n-225x300.jpg 225w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/09\/308028673_5244192442357693_7070009923381545673_n-768x1024.jpg 768w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/09\/308028673_5244192442357693_7070009923381545673_n-1152x1536.jpg 1152w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/09\/308028673_5244192442357693_7070009923381545673_n.jpg 1200w\" sizes=\"auto, (max-width: 225px) 100vw, 225px\" \/><\/figure><\/li><li class=\"blocks-gallery-item\"><figure><img loading=\"lazy\" decoding=\"async\" width=\"225\" height=\"300\" src=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/09\/309346181_5244192455691025_4720721842175748707_n-225x300.jpg\" alt=\"\" data-id=\"2997\" data-full-url=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/09\/309346181_5244192455691025_4720721842175748707_n.jpg\" data-link=\"https:\/\/rijetke-bolesti.com\/?attachment_id=2997\" class=\"wp-image-2997\" srcset=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/09\/309346181_5244192455691025_4720721842175748707_n-225x300.jpg 225w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/09\/309346181_5244192455691025_4720721842175748707_n-768x1024.jpg 768w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/09\/309346181_5244192455691025_4720721842175748707_n-1152x1536.jpg 1152w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/09\/309346181_5244192455691025_4720721842175748707_n.jpg 1536w\" sizes=\"auto, (max-width: 225px) 100vw, 225px\" \/><\/figure><\/li><\/ul><\/figure>","protected":false},"excerpt":{"rendered":"<p>Dopredsjednica Sara Bajlo i psihologinja Saveza Sanja Di\u00f3sy sudjelovale su na dvodnevnom me\u0111unarodnom sastanku pacijenata i predstavnika udruga za spinalnu mi\u0161i\u0107nu atrofiju s ciljem osna\u017eivanja SMA zajednice. Predstavnici udruga podijelili su svoje primjere dobre prakse. Odr\u017eana je i vo\u0111ena rasprava na temu osiguravanja novoro\u0111ena\u010dkog probira&#8230;<\/p>","protected":false},"author":3,"featured_media":2998,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"content-type":"","footnotes":""},"categories":[1],"tags":[],"class_list":["post-2995","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.0 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Me\u0111unarodni sastanak pacijenata i predstavnika udruga - Hrvatski savez za rijetke bolesti<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/rijetke-bolesti.com\/en\/medunarodni-sastanak-pacijenata-i-predstavnika-udruga\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Me\u0111unarodni sastanak pacijenata i predstavnika udruga - Hrvatski savez za rijetke bolesti\" \/>\n<meta property=\"og:description\" content=\"Dopredsjednica Sara Bajlo i psihologinja Saveza Sanja Di\u00f3sy sudjelovale su na dvodnevnom me\u0111unarodnom sastanku pacijenata i predstavnika udruga za spinalnu mi\u0161i\u0107nu atrofiju s ciljem osna\u017eivanja SMA zajednice. Predstavnici udruga podijelili su svoje primjere dobre prakse. Odr\u017eana je i vo\u0111ena rasprava na temu osiguravanja novoro\u0111ena\u010dkog probira...\" \/>\n<meta property=\"og:url\" content=\"https:\/\/rijetke-bolesti.com\/en\/medunarodni-sastanak-pacijenata-i-predstavnika-udruga\/\" \/>\n<meta property=\"og:site_name\" content=\"Hrvatski savez za rijetke bolesti\" \/>\n<meta property=\"article:published_time\" content=\"2022-09-08T13:24:00+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2022-09-29T13:34:33+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/09\/307977868_5244192585691012_6619993470230993154_n.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"2048\" \/>\n\t<meta property=\"og:image:height\" content=\"1552\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"sara\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"sara\" \/>\n\t<meta name=\"twitter:label2\" content=\"Estimated reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/rijetke-bolesti.com\/medunarodni-sastanak-pacijenata-i-predstavnika-udruga\/\",\"url\":\"https:\/\/rijetke-bolesti.com\/medunarodni-sastanak-pacijenata-i-predstavnika-udruga\/\",\"name\":\"Me\u0111unarodni sastanak pacijenata i predstavnika udruga - 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