{"id":2790,"date":"2022-06-20T10:29:51","date_gmt":"2022-06-20T08:29:51","guid":{"rendered":"https:\/\/rijetke-bolesti.com\/?p=2790"},"modified":"2025-04-02T11:56:25","modified_gmt":"2025-04-02T09:56:25","slug":"zavrsna-konferencija-razvoj-hrvatskog-resursnog-centra-za-rijetke-bolesti","status":"publish","type":"post","link":"https:\/\/rijetke-bolesti.com\/en\/zavrsna-konferencija-razvoj-hrvatskog-resursnog-centra-za-rijetke-bolesti\/","title":{"rendered":"Zavr\u0161na konferencija: Razvoj Hrvatskog resursnog centra za rijetke bolesti"},"content":{"rendered":"<div class=\"OutlineElement Ltr SCXW256828281 BCX0\" style=\"margin-right: 0px; margin-bottom: 0px; margin-left: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; overflow: visible; cursor: text; clear: both; position: relative; direction: ltr; font-family: 'Segoe UI', 'Segoe UI Web', Arial, Verdana, sans-serif; font-size: 12px;\">\n<p class=\"Paragraph SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; overflow-wrap: break-word; white-space: pre-wrap; vertical-align: baseline; font-kerning: none; color: windowtext;\"><span class=\"TextRun SCXW256828281 BCX0\" lang=\"HR-HR\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif; font-variant-ligatures: none !important;\" xml:lang=\"HR-HR\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">N<\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">akon uspje\u0161ne provedbe <\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">europskog <\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">projekta <\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">\u201eRazvoj Hrvatskog resursnog centra za rijetke bolesti\u201c (UP.02.2.2.06.0139), financiranog iz Europskog socijalnog fonda<\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\"> sa 1,3 <\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">mil<\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\"> kn ukupne vrijednosti<\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">, <\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">bilo <\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">nam je zadovoljstvo na Zavr\u0161noj konferenciji zajedno s na\u0161im projektnim partnerima<\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">, <\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">suradnici<\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">, udrugama \u010dlanicama i gostima <\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">proslaviti <\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">sve ono lijepo \u0161to smo ostvarili u proteklom razdoblju.<\/span><\/span><span class=\"EOP SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif;\" data-ccp-props=\"{&quot;201341983&quot;:2,&quot;335559739&quot;:160,&quot;335559740&quot;:235}\">\u00a0<\/span><\/p>\n<p>\u00a0<\/p>\n<\/div>\n<div class=\"OutlineElement Ltr SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; overflow: visible; cursor: text; clear: both; position: relative; direction: ltr; font-family: 'Segoe UI', 'Segoe UI Web', Arial, Verdana, sans-serif; font-size: 12px;\">\n<p class=\"Paragraph SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; overflow-wrap: break-word; white-space: pre-wrap; vertical-align: baseline; font-kerning: none; color: windowtext;\"><span class=\"TextRun SCXW256828281 BCX0\" lang=\"HR-HR\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-variant-ligatures: none !important; color: #222222; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif;\" xml:lang=\"HR-HR\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">Zavr\u0161n<\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">a<\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\"> konferencij<\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">a<\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\"> odr\u017ea<\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">na je <\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">dana\u202f<\/span><\/span><span class=\"TextRun SCXW256828281 BCX0\" lang=\"HR-HR\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-variant-ligatures: none !important; color: #222222; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif; font-weight: bold;\" xml:lang=\"HR-HR\" data-contrast=\"none\">14. lipnja 2022. godine s po\u010detkom u 18 sati,\u202f<\/span><span class=\"TextRun SCXW256828281 BCX0\" lang=\"HR-HR\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-variant-ligatures: none !important; color: #222222; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif;\" xml:lang=\"HR-HR\" data-contrast=\"none\">u prostorima Kaptol centra u Zagrebu -\u202f<\/span><span class=\"TextRun SCXW256828281 BCX0\" lang=\"HR-HR\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-variant-ligatures: none !important; color: #222222; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif; font-weight: bold;\" xml:lang=\"HR-HR\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">Kaptol\u202f Boutique <\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">Cinema<\/span><\/span><span class=\"TextRun SCXW256828281 BCX0\" lang=\"HR-HR\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-variant-ligatures: none !important; color: #222222; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif;\" xml:lang=\"HR-HR\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">. Program Konferencije obuhva\u0107a<\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">o je<\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\"> predstavljanje projekt<\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">nih rezultata<\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">, a nakon toga slijedi<\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">o je<\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\"> zajedni\u010dki domjenak i zakuska.<\/span><\/span><span class=\"EOP SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif; color: #222222;\" data-ccp-props=\"{&quot;201341983&quot;:2,&quot;335559739&quot;:160,&quot;335559740&quot;:235}\">\u00a0<\/span><\/p>\n<\/div>\n<div class=\"OutlineElement Ltr SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; overflow: visible; cursor: text; clear: both; position: relative; direction: ltr; font-family: 'Segoe UI', 'Segoe UI Web', Arial, Verdana, sans-serif; font-size: 12px;\">\n<p class=\"Paragraph SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; overflow-wrap: break-word; white-space: pre-wrap; vertical-align: baseline; font-kerning: none; color: windowtext;\"><span class=\"TextRun SCXW256828281 BCX0\" lang=\"HR-HR\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-variant-ligatures: none !important; color: #222222; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif;\" xml:lang=\"HR-HR\" data-contrast=\"none\">The conference was opened by <\/span><span class=\"TextRun SCXW256828281 BCX0\" lang=\"HR-HR\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-variant-ligatures: none !important; color: #222222; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif; font-weight: bold;\" xml:lang=\"HR-HR\" data-contrast=\"none\">dopredsjednica Saveza, Sara Bajlo<\/span><span class=\"TextRun SCXW256828281 BCX0\" lang=\"HR-HR\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-variant-ligatures: none !important; color: #222222; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif;\" xml:lang=\"HR-HR\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\"> koja je pozdravila sve prisutne i <\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">za\u017eelila<\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\"> im dobrodo\u0161licu, a prisutne je pozdravila i predstavnica Grada Zagreba, <strong>g\u0111a. <\/strong><\/span><\/span><span class=\"TextRun SCXW256828281 BCX0\" lang=\"HR-HR\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-variant-ligatures: none !important; color: #222222; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif;\" xml:lang=\"HR-HR\" data-contrast=\"none\"><strong>Ivana Portolan Paji\u0107<\/strong> nam u ime Grada pru\u017eila podr\u0161ku i vjetar u le\u0111a za sve na\u0161e aktivnosti kojim doprinosimo podizanju kvalitete \u017eivota ranjivih skupina s rijetkim bolestima.<\/span><span class=\"EOP SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif; color: #222222;\" data-ccp-props=\"{&quot;201341983&quot;:2,&quot;335559739&quot;:160,&quot;335559740&quot;:235}\">\u00a0<\/span><\/p>\n<p>\u00a0<\/p>\n<\/div>\n<div class=\"OutlineElement Ltr SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; overflow: visible; cursor: text; clear: both; position: relative; direction: ltr; font-family: 'Segoe UI', 'Segoe UI Web', Arial, Verdana, sans-serif; font-size: 12px;\">\n<p class=\"Paragraph SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; overflow-wrap: break-word; white-space: pre-wrap; vertical-align: baseline; font-kerning: none; color: windowtext;\"><span class=\"TextRun SCXW256828281 BCX0\" lang=\"HR-HR\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-variant-ligatures: none !important; color: #222222; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif; font-weight: bold;\" xml:lang=\"HR-HR\" data-contrast=\"none\">Voditeljica projekta Sr\u0111ana \u0160imac<\/span><span class=\"TextRun SCXW256828281 BCX0\" lang=\"HR-HR\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-variant-ligatures: none !important; color: #222222; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif;\" xml:lang=\"HR-HR\" data-contrast=\"none\"> <span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">predstavila je<\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\"> pregled rezultata i postignu\u0107a ostvarenih tijekom dvogodi\u0161njeg razdoblja provedbe projekta\u202fod <\/span><\/span><span class=\"TextRun SCXW256828281 BCX0\" lang=\"HR-HR\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-variant-ligatures: none !important; color: #222222; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif; font-weight: bold;\" xml:lang=\"HR-HR\" data-contrast=\"none\">1. srpnja 2020. do 30. lipnja 2022<\/span><span class=\"TextRun SCXW256828281 BCX0\" lang=\"HR-HR\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-variant-ligatures: none !important; color: #222222; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif;\" xml:lang=\"HR-HR\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">. godine,<\/span> <span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">kojega je nositelj projekta Hrvatski savez za rijetke bolesti u partnerstvu s Udrugom DEBRA uspje\u0161no realizirao.<\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\"> Posebno je istaknula va\u017enost projekta za ciljne skupine, budu\u0107i da su aktivnostima obuhva\u0107eni sudionici s podru\u010dja cijele Republike Hrvatske<\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\"> u vi\u0161e od 60 gradova i manjih naselja<\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">, uklju\u010duju\u0107i i teritorijalno udaljenija podru\u010dja na kojima su socijalne usluge te\u017ee dostupne. Dodatnu vrijednost projektu dala je i raznovrsnost projektnih aktivnosti, budu\u0107i da je za svaku ciljnu skupinu bilo dostupno istovremeno po nekoliko razli\u010ditih vrsta socijalnih usluga u kojima su mogli sudjelovati<\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\"> potpuno besplatno.<\/span><\/span><span class=\"EOP SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif; color: #222222;\" data-ccp-props=\"{&quot;201341983&quot;:2,&quot;335559739&quot;:160,&quot;335559740&quot;:235}\">\u00a0<\/span><\/p>\n<p>\u00a0<\/p>\n<\/div>\n<div class=\"OutlineElement Ltr SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; overflow: visible; cursor: text; clear: both; position: relative; direction: ltr; font-family: 'Segoe UI', 'Segoe UI Web', Arial, Verdana, sans-serif; font-size: 12px;\">\n<p class=\"Paragraph SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; overflow-wrap: break-word; white-space: pre-wrap; vertical-align: baseline; font-kerning: none; color: windowtext;\"><span class=\"TextRun SCXW256828281 BCX0\" lang=\"HR-HR\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-variant-ligatures: none !important; color: #222222; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif;\" xml:lang=\"HR-HR\" data-contrast=\"none\">Nakon toga, doprinos projektu <\/span><span class=\"TextRun SCXW256828281 BCX0\" lang=\"HR-HR\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-variant-ligatures: none !important; color: #222222; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif; font-weight: bold;\" xml:lang=\"HR-HR\" data-contrast=\"none\">predstavila je Mateja Krznar, zdravstvena edukatorica<\/span><span class=\"TextRun SCXW256828281 BCX0\" lang=\"HR-HR\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-variant-ligatures: none !important; color: #222222; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif;\" xml:lang=\"HR-HR\" data-contrast=\"none\"> koja je u sklopu partnerske organizacije DEBRA sudjelovala u edukativnim projektnim aktivnostima za stru\u010dnjake i \u0161kole, koje su bile od velike va\u017enosti za stvaranje okru\u017eenja za bolje razumijevanje i prihva\u0107anje osoba s rijetkim bolestima.\u00a0<\/span><span class=\"EOP SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif; color: #222222;\" data-ccp-props=\"{&quot;201341983&quot;:2,&quot;335559739&quot;:160,&quot;335559740&quot;:235}\">\u00a0<\/span><\/p>\n<p>\u00a0<\/p>\n<\/div>\n<div class=\"OutlineElement Ltr SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; overflow: visible; cursor: text; clear: both; position: relative; direction: ltr; font-family: 'Segoe UI', 'Segoe UI Web', Arial, Verdana, sans-serif; font-size: 12px;\">\n<p class=\"Paragraph SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; overflow-wrap: break-word; white-space: pre-wrap; vertical-align: baseline; font-kerning: none; color: windowtext;\"><span class=\"TextRun SCXW256828281 BCX0\" lang=\"HR-HR\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-variant-ligatures: none !important; color: #222222; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif;\" xml:lang=\"HR-HR\" data-contrast=\"none\">Osim kvantitativnih podataka i rezultata, \u017eeljeli smo javnosti predstaviti i <\/span><span class=\"TextRun SCXW256828281 BCX0\" lang=\"HR-HR\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-variant-ligatures: none !important; color: #222222; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif; font-weight: bold;\" xml:lang=\"HR-HR\" data-contrast=\"none\">pogled iz perspektive samih sudionika projekta<\/span><span class=\"TextRun SCXW256828281 BCX0\" lang=\"HR-HR\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-variant-ligatures: none !important; color: #222222; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif;\" xml:lang=\"HR-HR\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\"> i pru\u017eiti priliku da nam oni izravno iz prve ruke prika\u017eu \u0161to je projekt zna\u010dio za njih. Sudionici su sudjelovali u pripremi video materijala koji su u obliku kratkog <\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">filmi\u0107a<\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\"> prikazani u sklopu Zavr\u0161ne konferencije.\u00a0<\/span><\/span><span class=\"EOP SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif; color: #222222;\" data-ccp-props=\"{&quot;201341983&quot;:2,&quot;335559739&quot;:160,&quot;335559740&quot;:235}\">\u00a0<\/span><\/p>\n<p>\u00a0<\/p>\n<\/div>\n<div class=\"OutlineElement Ltr SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; overflow: visible; cursor: text; clear: both; position: relative; direction: ltr; font-family: 'Segoe UI', 'Segoe UI Web', Arial, Verdana, sans-serif; font-size: 12px;\">\n<p class=\"Paragraph SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; overflow-wrap: break-word; white-space: pre-wrap; vertical-align: baseline; font-kerning: none; color: windowtext;\"><span class=\"TextRun SCXW256828281 BCX0\" lang=\"HR-HR\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-variant-ligatures: none !important; color: #222222; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif;\" xml:lang=\"HR-HR\" data-contrast=\"none\">U zavr\u0161nom dijelu Konferencije, <\/span><span class=\"TextRun SCXW256828281 BCX0\" lang=\"HR-HR\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-variant-ligatures: none !important; color: #222222; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif; font-weight: bold;\" xml:lang=\"HR-HR\" data-contrast=\"none\">psihologinja Saveza, Sanja Bulog<\/span><span class=\"TextRun SCXW256828281 BCX0\" lang=\"HR-HR\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-variant-ligatures: none !important; color: #222222; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif;\" xml:lang=\"HR-HR\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\"> predstavila je <\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">prisutnima<\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\"> pogled na utjecaj i va\u017enost projektnih aktivnosti te podijelila dojmove i zna\u010denje ovakvih oblika podr\u0161ke i aktivnosti za djecu, roditelje i stru\u010dnjake. Iz kvalitativnog prikaza rezultata, bilo je vidljivo koliku va\u017enost ali i emotivnu komponentu su nosile odre\u0111ene projektne aktivnosti.\u00a0<\/span><\/span><span class=\"EOP SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif; color: #222222;\" data-ccp-props=\"{&quot;201341983&quot;:2,&quot;335559739&quot;:160,&quot;335559740&quot;:235}\">\u00a0<\/span><\/p>\n<p>\u00a0<\/p>\n<\/div>\n<div class=\"OutlineElement Ltr SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; overflow: visible; cursor: text; clear: both; position: relative; direction: ltr; font-family: 'Segoe UI', 'Segoe UI Web', Arial, Verdana, sans-serif; font-size: 12px;\">\n<p class=\"Paragraph SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; overflow-wrap: break-word; white-space: pre-wrap; vertical-align: baseline; font-kerning: none; color: windowtext;\"><span class=\"TextRun SCXW256828281 BCX0\" lang=\"HR-HR\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-variant-ligatures: none !important; color: #222222; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif;\" xml:lang=\"HR-HR\" data-contrast=\"none\"><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">Bi<\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\">lo nam je drago<\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\"> podijeliti rezultate i povratne informacije o va\u017enosti pru\u017eanja ovakvih oblika podr\u0161ke osobama s rijetkim bolestima, predstaviti utjecaj projektnih aktivnosti na sudionike koji su izravno bili uklju\u010deni u aktivnosti te podr\u017eati nastavak umre\u017eavanja i osmi\u0161ljavanja kvalitetnih usluga i potrebnih aktivnosti za na\u0161e \u010dlanove<\/span><span class=\"NormalTextRun SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent;\"> i osobe s rijetkim bolestima.<\/span><\/span><span class=\"EOP SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif; color: #222222;\" data-ccp-props=\"{&quot;201341983&quot;:2,&quot;335559739&quot;:160,&quot;335559740&quot;:235}\">\u00a0<\/span><\/p>\n<\/div>\n<div class=\"OutlineElement Ltr SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; overflow: visible; cursor: text; clear: both; position: relative; direction: ltr; font-family: 'Segoe UI', 'Segoe UI Web', Arial, Verdana, sans-serif; font-size: 12px;\">\n<p class=\"Paragraph SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; overflow-wrap: break-word; white-space: pre-wrap; vertical-align: baseline; font-kerning: none; color: windowtext;\"><span class=\"EOP SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif; color: #222222;\" data-ccp-props=\"{&quot;201341983&quot;:2,&quot;335559739&quot;:160,&quot;335559740&quot;:235}\">\u00a0<\/span><\/p>\n<\/div>\n<div class=\"OutlineElement Ltr SCXW256828281 BCX0\" style=\"margin-top: 0px; margin-right: 0px; margin-left: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; overflow: visible; cursor: text; clear: both; position: relative; direction: ltr; font-family: 'Segoe UI', 'Segoe UI Web', Arial, Verdana, sans-serif; font-size: 12px;\">\n<p class=\"Paragraph SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; overflow-wrap: break-word; white-space: pre-wrap; vertical-align: baseline; font-kerning: none; color: windowtext;\"><span class=\"TextRun SCXW256828281 BCX0\" lang=\"HR-HR\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-variant-ligatures: none !important; color: #222222; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif;\" xml:lang=\"HR-HR\" data-contrast=\"none\">Zahvaljujemo svim sudionicima projekta, partnerskoj organizaciji DEBRA, svim na\u0161im suradnicima, izvoditeljima, gostima, \u010dlanovima i svima koji su nam na bilo koji na\u010din pru\u017eili podr\u0161ku i bili dio ove posebne pri\u010de.<\/span><span class=\"EOP SCXW256828281 BCX0\" style=\"margin: 0px; padding: 0px; user-select: text; -webkit-user-drag: none; -webkit-tap-highlight-color: transparent; font-size: 11pt; line-height: 17px; font-family: Calibri, Calibri_EmbeddedFont, Calibri_MSFontService, sans-serif; color: #222222;\" data-ccp-props=\"{&quot;201341983&quot;:2,&quot;335559739&quot;:160,&quot;335559740&quot;:235}\">\u00a0<\/span><\/p>\n<\/div>\n\n\n<div style=\"height:100px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<figure class=\"wp-block-gallery columns-3 is-cropped wp-block-gallery-1 is-layout-flex wp-block-gallery-is-layout-flex\"><ul class=\"blocks-gallery-grid\"><li class=\"blocks-gallery-item\"><figure><img loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"1024\" src=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/06\/Image-from-iOS-14-768x1024.jpg\" alt=\"\" data-id=\"2795\" data-link=\"https:\/\/rijetke-bolesti.com\/?attachment_id=2795\" class=\"wp-image-2795\" srcset=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/06\/Image-from-iOS-14-768x1024.jpg 768w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/06\/Image-from-iOS-14-225x300.jpg 225w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/06\/Image-from-iOS-14-1152x1536.jpg 1152w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/06\/Image-from-iOS-14-1536x2048.jpg 1536w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/06\/Image-from-iOS-14-scaled.jpg 1920w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \/><\/figure><\/li><li class=\"blocks-gallery-item\"><figure><img loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"1024\" src=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/06\/Image-from-iOS-11-768x1024.jpg\" alt=\"\" data-id=\"2792\" data-link=\"https:\/\/rijetke-bolesti.com\/?attachment_id=2792\" class=\"wp-image-2792\" srcset=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/06\/Image-from-iOS-11-768x1024.jpg 768w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/06\/Image-from-iOS-11-225x300.jpg 225w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/06\/Image-from-iOS-11-1152x1536.jpg 1152w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/06\/Image-from-iOS-11-1536x2048.jpg 1536w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/06\/Image-from-iOS-11-scaled.jpg 1920w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \/><\/figure><\/li><li class=\"blocks-gallery-item\"><figure><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"768\" src=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/06\/20220614_183647-1-1024x768.jpg\" alt=\"\" data-id=\"2791\" data-link=\"https:\/\/rijetke-bolesti.com\/?attachment_id=2791\" class=\"wp-image-2791\" srcset=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/06\/20220614_183647-1-1024x768.jpg 1024w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/06\/20220614_183647-1-300x225.jpg 300w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/06\/20220614_183647-1-768x576.jpg 768w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/06\/20220614_183647-1-1536x1152.jpg 1536w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/06\/20220614_183647-1-2048x1536.jpg 2048w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure><\/li><li class=\"blocks-gallery-item\"><figure><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"768\" src=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/06\/Image-from-iOS-12-1024x768.jpg\" alt=\"\" data-id=\"2793\" data-link=\"https:\/\/rijetke-bolesti.com\/?attachment_id=2793\" class=\"wp-image-2793\" srcset=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/06\/Image-from-iOS-12-1024x768.jpg 1024w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/06\/Image-from-iOS-12-300x225.jpg 300w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/06\/Image-from-iOS-12-768x576.jpg 768w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/06\/Image-from-iOS-12-1536x1152.jpg 1536w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/06\/Image-from-iOS-12-2048x1536.jpg 2048w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure><\/li><li class=\"blocks-gallery-item\"><figure><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"768\" src=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/06\/Image-from-iOS-13-1024x768.jpg\" alt=\"\" data-id=\"2794\" data-link=\"https:\/\/rijetke-bolesti.com\/?attachment_id=2794\" class=\"wp-image-2794\" srcset=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/06\/Image-from-iOS-13-1024x768.jpg 1024w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/06\/Image-from-iOS-13-300x225.jpg 300w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/06\/Image-from-iOS-13-768x576.jpg 768w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/06\/Image-from-iOS-13-1536x1152.jpg 1536w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/06\/Image-from-iOS-13-2048x1536.jpg 2048w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure><\/li><li class=\"blocks-gallery-item\"><figure><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"768\" 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