{"id":2669,"date":"2022-04-11T10:34:00","date_gmt":"2022-04-11T08:34:00","guid":{"rendered":"https:\/\/rijetke-bolesti.com\/?p=2669"},"modified":"2022-04-12T10:41:06","modified_gmt":"2022-04-12T08:41:06","slug":"kampanja-i-moje-srce-je-vazno-za-oboljele-od-rijetke-bolesti-attr-cm","status":"publish","type":"post","link":"https:\/\/rijetke-bolesti.com\/en\/kampanja-i-moje-srce-je-vazno-za-oboljele-od-rijetke-bolesti-attr-cm\/","title":{"rendered":"Kampanja &#8221; I moje srce je va\u017eno&#8221; za oboljele od rijetke bolesti ATTR-CM"},"content":{"rendered":"<p><strong>Desetero oboljelih od rijetke bolesti srca \u010deka lijek koji im produ\u017euje \u017eivot: od 150 oboljelih u Hrvatskoj, samo ih dvoje prima ciljanu terapiju, a prosje\u010dno pre\u017eivljenje za nelije\u010dene pacijente je od 2,5 do 4 godine od postavljanja dijagnoze. <\/strong><\/p>\n\n\n<div class=\"wp-block-image\"><figure class=\"aligncenter size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/04\/Infografike-za-rijetke-bolesti-1017x1024.png\" alt=\"\" class=\"wp-image-2671\" width=\"553\" height=\"556\" srcset=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/04\/Infografike-za-rijetke-bolesti-1017x1024.png 1017w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/04\/Infografike-za-rijetke-bolesti-298x300.png 298w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/04\/Infografike-za-rijetke-bolesti-150x150.png 150w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/04\/Infografike-za-rijetke-bolesti-768x773.png 768w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/04\/Infografike-za-rijetke-bolesti-1526x1536.png 1526w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/04\/Infografike-za-rijetke-bolesti-2034x2048.png 2034w\" sizes=\"auto, (max-width: 553px) 100vw, 553px\" \/><\/figure><\/div>\n\n\n<p>Transtiretinska amiloidna kardiomiopatija (ATTR-CM) nedovoljno je poznata bolest i rijetko se dijagnosticira. Nastaje zbog pogre\u0161nog smatanja proteina transtiretina, koji se sintetizira u jetri, uzrokuju\u0107i stvaranje \u0161tetnih vlakana amiloida &#8211; oni se potom talo\u017ee u sr\u010danom mi\u0161i\u0107u, \u0161to dovodi do o\u0161te\u0107enja i zatajenja srca. Javlja se u dva oblika &#8211; nasljedni, odnosno genski uzrokovan, te\u00a0 nenasljedni, takozvani divlji tip bolesti.<\/p>\n<p>Vi\u0161e o ATTR-CM mo\u017eete prona\u0107i u <a href=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/04\/LETAK.pdf\">Letku.<\/a><\/p>\n<p>Procjenjuje se da je u Hrvatskoj oko 150 oboljelih od ATTR-CM-a: desetero je dijagnosticirano i \u010deka na lije\u010denje, a samo dvoje ih se trenuta\u010dno lije\u010di odgovaraju\u0107im ciljanim lijekom. \u00a0Lije\u010dnici procjenjuju da \u0107e u naredne tri godine oko 50 oboljelih biti dijagnosticirano i \u00a0kandidati za lije\u010denje lijekom koji produ\u017euje \u017eivot.<\/p>\n<p>Zbog kontinuiranog odga\u0111anja uvo\u0111enja ciljane terapije koja produ\u017euje \u017eivot oboljelima od ATTR-CM, zbog \u010dega su dosad izgubljeni mnogi \u017eivoti, pokrenuli smo kampanju <strong><em>\u201eI moje je srce va\u017eno\u201c. <\/em><\/strong>Cilj je oboljelima od ATTR-CM-a u\u010diniti dostupnim lije\u010denje ciljanom terapijom koja im produ\u017euje \u017eivot, ali i ukazati javnosti na postojanje ove te\u0161ke bolesti.\u00a0<\/p>\n\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"724\" src=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/04\/Infografika-s-tekstom-1024x724.png\" alt=\"\" class=\"wp-image-2673\" srcset=\"https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/04\/Infografika-s-tekstom-1024x724.png 1024w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/04\/Infografika-s-tekstom-300x212.png 300w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/04\/Infografika-s-tekstom-768x543.png 768w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/04\/Infografika-s-tekstom-1536x1086.png 1536w, https:\/\/rijetke-bolesti.com\/wp-content\/uploads\/2022\/04\/Infografika-s-tekstom-2048x1448.png 2048w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>","protected":false},"excerpt":{"rendered":"<p>Desetero oboljelih od rijetke bolesti srca \u010deka lijek koji im produ\u017euje \u017eivot: od 150 oboljelih u Hrvatskoj, samo ih dvoje prima ciljanu terapiju, a prosje\u010dno pre\u017eivljenje za nelije\u010dene pacijente je od 2,5 do 4 godine od postavljanja dijagnoze. Transtiretinska amiloidna kardiomiopatija (ATTR-CM) nedovoljno je poznata&#8230;<\/p>","protected":false},"author":3,"featured_media":2670,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"content-type":"","footnotes":""},"categories":[1],"tags":[],"class_list":["post-2669","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.0 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Kampanja &#039;&#039; I moje srce je va\u017eno&#039;&#039; za oboljele od rijetke bolesti ATTR-CM - Hrvatski savez za rijetke bolesti<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/rijetke-bolesti.com\/en\/kampanja-i-moje-srce-je-vazno-za-oboljele-od-rijetke-bolesti-attr-cm\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Kampanja &#039;&#039; I moje srce je va\u017eno&#039;&#039; za oboljele od rijetke bolesti ATTR-CM - Hrvatski savez za rijetke bolesti\" \/>\n<meta property=\"og:description\" content=\"Desetero oboljelih od rijetke bolesti srca \u010deka lijek koji im produ\u017euje \u017eivot: od 150 oboljelih u Hrvatskoj, samo ih dvoje prima ciljanu terapiju, a prosje\u010dno pre\u017eivljenje za nelije\u010dene pacijente je od 2,5 do 4 godine od postavljanja dijagnoze. 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