{"id":2044,"date":"2021-09-29T09:25:22","date_gmt":"2021-09-29T07:25:22","guid":{"rendered":"https:\/\/rijetke-bolesti.com\/?p=2044"},"modified":"2025-03-11T12:19:11","modified_gmt":"2025-03-11T10:19:11","slug":"medunarodni-dan-osoba-oboljelih-od-gaucherove-bolesti","status":"publish","type":"post","link":"https:\/\/rijetke-bolesti.com\/en\/medunarodni-dan-osoba-oboljelih-od-gaucherove-bolesti\/","title":{"rendered":"Me\u0111unarodni dan osoba oboljelih od Gaucherove bolesti"},"content":{"rendered":"

Dragi prijatelji,<\/p>\n

1. listopada obilje\u017eavamo Me\u0111unarodni dan osoba oboljelih od Gaucherove bolesti. Hrvatska Gaucher udruga i ove godine aktivno sudjeluje u promociji Me\u0111unarodnog Gaucher dana u suradnji s\u00a0International Gaucher alliance<\/em>.<\/p>\n

Tema ovogodi\u0161nje kampanje je ‘\u0161to ranija dijagnoza, to kvalitetniji \u017eivot’ (‘early diagnosis, better lives’<\/em>). Nizom edukativnih tekstova, svjedo\u010danstava oboljelih i objava na dru\u0161tvenim mre\u017eama i web portalima, poku\u0161at \u0107emo skrenuti pa\u017enju javnosti na oboljele od ove rijetke bolesti i probleme s kojima se susre\u0107u. Pridru\u017eite nam se u na\u0161im nastojanjima, pratite nas, podijelite ili barem lajkajte na\u0161e objave, nama ve\u0107 i to puno zna\u010di.<\/p>\n

Jedni smo od rijetkih, ali neka znamo da nismo sami!<\/p>\n

Pratiti nas mo\u017eete putem na\u0161e mre\u017ene (\u00a0<\/i>https:\/\/www.hrvatska-gaucher-udruga.hr\/<\/a><\/i>\u00a0) i Facebook stranice (\u00a0<\/i>https:\/\/www.facebook.com\/HrvatskaGaucherUdruga<\/a><\/i>\u00a0)<\/i><\/p>\n

#rarebutnotalone<\/p>\n

#IGD2021<\/p>\n

#earlydiagnosis<\/p>","protected":false},"excerpt":{"rendered":"

Dragi prijatelji, 1. listopada obilje\u017eavamo Me\u0111unarodni dan osoba oboljelih od Gaucherove bolesti. Hrvatska Gaucher udruga i ove godine aktivno sudjeluje u promociji Me\u0111unarodnog Gaucher dana u suradnji s\u00a0International Gaucher alliance. Tema ovogodi\u0161nje kampanje je ‘\u0161to ranija dijagnoza, to kvalitetniji \u017eivot’ (‘early diagnosis, better lives’). Nizom…<\/p>","protected":false},"author":3,"featured_media":2045,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"content-type":"","footnotes":""},"categories":[1],"tags":[],"class_list":["post-2044","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized"],"yoast_head":"\nMe\u0111unarodni dan osoba oboljelih od Gaucherove bolesti - Hrvatski savez za rijetke bolesti<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/rijetke-bolesti.com\/en\/medunarodni-dan-osoba-oboljelih-od-gaucherove-bolesti\/\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Me\u0111unarodni dan osoba oboljelih od Gaucherove bolesti - Hrvatski savez za rijetke bolesti\" \/>\n<meta property=\"og:description\" content=\"Dragi prijatelji, 1. listopada obilje\u017eavamo Me\u0111unarodni dan osoba oboljelih od Gaucherove bolesti. Hrvatska Gaucher udruga i ove godine aktivno sudjeluje u promociji Me\u0111unarodnog Gaucher dana u suradnji s\u00a0International Gaucher alliance. Tema ovogodi\u0161nje kampanje je ‘\u0161to ranija dijagnoza, to kvalitetniji \u017eivot’ (‘early diagnosis, better lives’). 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