Croatian Alliance for Rare Diseases<\/strong> (HSRB) is a social-humanitarian, non-partisan, and non-profit association that brings together organizations with members affected by rare diseases, individuals suffering from rare diseases, and persons with disabilities resulting from rare diseases. This unites them into a single community within the Republic of Croatia to achieve, harmonize, and protect their individual and collective rights and interests.<\/p>\n\n\n\n The Alliance represents its members in promoting humanitarian efforts, social inclusion, advancements in treatment, research, rehabilitation, and the protection of people affected by rare diseases in Croatia and worldwide.<\/p>\n\n\n\n Through daily activities, the Alliance provides necessary support to its patient-members\u2014directly via phone or email\u2014and advocates for their rights to accurate information, access to treatment, and social services. It serves as an umbrella organization that brings together existing patient groups suffering from rare diseases, as well as individuals who, due to their small numbers, could not form their own organizations to address their issues collectively.<\/p>\n\n\n\n By working together, we aim to ensure quality medical and psychosocial care for people with rare diseases through the adoption of a National Program for Rare Diseases. O Savezu HRVATSKI SAVEZ ZA RIJETKE BOLESTI (HSRB) je socijalno-humanitarna, nestrana\u010dka i neprofitna udruga u koju se dobrovoljno udru\u017euju udruge s \u010dlanovima oboljelim od rijetkih bolesti, pojedinci oboljeli od rijetkih bolesti te osobe s invaliditetom nastalim kao posljedica rijetke bolesti, u jedinstvenu zajednicu na podru\u010dju Republike…<\/p>","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"content-type":"","footnotes":""},"class_list":["post-674","page","type-page","status-publish","hentry"],"yoast_head":"\n
Furthermore, we strive to improve access to existing treatments, develop centers of excellence for specific diseases and\/or groups of diseases, enable Croatian patients to participate in international medical research, provide psychological support for families, and reduce the social exclusion of rare disease patients.<\/p>","protected":false},"excerpt":{"rendered":"